nomidsyndrome : N.O.M.I.D/C.I.N.C.A. Syndrome

Prayers for all in the floods:Great Britain, Scotland, Ireland, Wale I have been thinking of all today, as I saw the horrible floods and devastation in your countries, and hope that all in our group were spared. My prayers go Posted - Fri Nov 20, 2009 7:32 pm	sfokaren2003 Offline Send Email
Re: re-question Hi Colin thankyou for your reply I am sure I have spoken to you by telephone many many years ago, the problem with this condition seems to me that every child Posted - Tue Nov 17, 2009 2:33 pm	lornawilkie17 Offline Send Email
Re: re-question Lorna Although diagnosed with CINCA/NOMID our daughter, Matilda, is believed to possibly have at least one other underlying condition. A complexed case Posted - Tue Nov 17, 2009 12:28 pm	COLIN BAILEY colin375477 Offline Send Email
re-question Thankyou so far to the two people who have responded to my question regarding anakinra, my son is on the correct dose of anakinra for his weight and is also on Posted - Tue Nov 17, 2009 11:52 am	lornawilkie17 Offline Send Email
Re: question Hello. Our daughter was diagnosed at 8 months as of April this year and she had similar pain problems as well. The doctor had her on Naprosyn twice a day and Posted - Tue Nov 17, 2009 3:41 am	mike.oisten Offline Send Email
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