I have been thinking of all today, as I saw the horrible floods and devastation in your countries, and hope that all in our group were spared. My prayers go
Hi Colin thankyou for your reply I am sure I have spoken to you by telephone many many years ago, the problem with this condition seems to me that every child
Lorna  Although diagnosed with CINCA/NOMID our daughter, Matilda, is believed to possibly have at least one other underlying condition. A complexed case
Thankyou so far to the two people who have responded to my question regarding anakinra, my son is on the correct dose of anakinra for his weight and is also on
Hello. Our daughter was diagnosed at 8 months as of April this year and she had similar pain problems as well. The doctor had her on Naprosyn twice a day and