By accident my neurologist found from a MRI that I have two angiomas in my brain. I had a follow up CT scan that showed that they are benign. I have not found...
the benign and the angiomas are the same I think but thats okay...it's nice to see some one actually posting on this site again...anyhow I've never had a...
I was diagnosed with a venous angioma in the front left temporal lobe of my brain about three years ago now. Doctors in my area have told me that it probably...
It's not necessarily true that venous angiomas don't cause symptoms because many of us out there are finding that they in fact do. On top of the typical head...
I posted you a response a few days ago but it didn't show up so i don't know if you received it or not but I wanted to thank you for responding to my post. You...
I am new to this group. My name is Patricia (Tricia) and I have been searching for a support group now for a couple of months, and do not really know if this...
I hate doctors! It seems they play like they know it all, yet really know nothing. First dr says meds because it is causing his seizures (which only causes...
Hi all, it's nice to find this group and i'm amazed it's so small (another group i'm in for APS started 'round the same time and has 900 members). I was just...
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Enter your vote today! A new poll has been created for the neurovascular group: IF YOU HAVE BEEN DIAGNOSED WITH A VENOUS ANGIOMA OF THE BRAIN, WHAT TYPES OF...
Hi, I'm so glad to have found this group! I have a Venous Angioma in my left frontal lobe, and also a "white spot" on each lobe (looked like the size of a...
Cheryl, thank you so much for your insights about all of this. We are so confused and just want some answers. Our present plan is to see what the Cincinnati...
Hi, my name is Darla. My story is about my son, 2 year old Trent, the sweetest little pumpkin head I know. When he was about 9 months old I started to notice...
Thank you so much for your thoughts, it would be nice to have answers but this seems extremely rare in pediatrics. Hopefully I will learn something that our...
Well, I saw the neurosurgeon this morning, and the verdict is in. I'm going to have a gamma knife procedure on June 13. I have read a lot of the clinical and...
Hi, my name is Sara, and I'm new here. I'm 18, and I'm a college freshman in Alabama. I recently found out that I have an AVM in my left frontal lobe. It ...
Hi there. Anyone have had the gamma knife for treatment of their CA? I just saw a nerosurgeon that highly recommended it for mine. Does anyone have any...
I was diagnosed with CA after a bleed in 1994. I bled again in 1998 after I discovered I was pregnant. Saw doctor at Emory University in Atlanta, GA and was...
Hi everybody, I'm new to the group. I have a Cavernous Angioma in my right Temporal Lobe. Has anybody in here had surgery for theres? Has anybody in here had...
Hi, My Mom was just diagnosised with Cavernous Angioma, she has seizures with it. She is now having a third medical opinion because the previous two were...
&nb sp; “The most effective anti-aging therapy.” Dr. Thierry Hertoghe, President of the European Academy for Quality Life and Longevity Medicine After the...
Hello! My name is Kris. I am the Mom of 2. Jordan is 5 and Hayleigh is 23 months.I am absolutely amazed that I finally found a group for rare neurovascular...
Just by luck, I ran across this group and I am so glad I found you. I was diagnosed approximately three months ago with what my neurologist and neurosurgeon...
I know that AVM's are very rare, but I was surprised to find so few members in this group. My daughter had an episode where her AVM ruptured and was...
I've been sick for five years now - for the first two and a half the doctors kept on telling me I was just crazy - and then I walked into the doctors office...
Hello, There is a new survey for the neurovascular ... Have you or a loved ont been diagnosed with any of the following medical conditions? o cavernous angioma...