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6
Best erotic comics for AVS members: http://www.comics100.non.ru __________________________________________________ Terrorist Attacks on U.S. - How can you...
Light Nicky
wilky_nox@...
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Sep 19, 2001
1:14 pm
7
Just by luck, I ran across this group and I am so glad I found you. I was diagnosed approximately three months ago with what my neurologist and neurosurgeon...
sandimccann
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Feb 6, 2002
1:57 am
8
Hello! My name is Kris. I am the Mom of 2. Jordan is 5 and Hayleigh is 23 months.I am absolutely amazed that I finally found a group for rare neurovascular...
Scott & Kristi Pahnke
jordan_hayle...
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Apr 2, 2002
5:34 pm
9
OOPS! Now that I am reading other stories I realize this isn't the right place for me. My daughter has Pulmonary AVM. Sorry about that. :o( Kris Scott Jordan...
Scott & Kristi Pahnke
jordan_hayle...
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Apr 2, 2002
5:41 pm
10
Hello Kris. Just read your interesting account of your daughter's AVM. I have a related disorder (AVF - Arteriovenous Fistula), so I do a lot of reading on...
tds
paix12
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Apr 2, 2002
5:51 pm
11
&nb sp; “The most effective anti-aging therapy.” Dr. Thierry Hertoghe, President of the European Academy for Quality Life and Longevity Medicine After the...
PureGHR15
buypureghr15
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May 7, 2002
8:29 pm
12
Hi, My Mom was just diagnosised with Cavernous Angioma, she has seizures with it. She is now having a third medical opinion because the previous two were...
B.J.
bjc112876
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Oct 20, 2003
7:25 am
13
Hi BJ: I have a telangiectasia on the brain stem. It is very small and I have had two local specialists tell me that I should not consider surgery and/or other...
Sandi
sandimccann
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Oct 20, 2003
10:30 am
14
Hi BJ, Please try the Angioma Alliance website, the only organization specifically for those affected by cavernous angioma. We have an active Community Forum...
Connie Lee
conniehere2002
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Oct 20, 2003
11:38 am
15
I was diagnosed with CA after a bleed in 1994. I bled again in 1998 after I discovered I was pregnant. Saw doctor at Emory University in Atlanta, GA and was...
cow31201
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Feb 12, 2004
4:58 pm
16
Hi everybody, I'm new to the group. I have a Cavernous Angioma in my right Temporal Lobe. Has anybody in here had surgery for theres? Has anybody in here had...
kidro85@...
classicapes
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Jan 25, 2005
3:44 pm
17
Hi group. I am Kaye. I have a cavernous angioma in my left temporal lobe. It is 2cm. I had a seizure Christmas. Medication have the seizures under...
gentleo
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Jan 27, 2005
2:54 pm
18
Hi there. Anyone have had the gamma knife for treatment of their CA? I just saw a nerosurgeon that highly recommended it for mine. Does anyone have any...
gentleo
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Feb 3, 2005
10:40 pm
19
Kaye, Hi again, its Tony, unfortunately nobody in this Cavernous angioma group ever responds, or maybe we are the group- ha, if there is anybody else the...
kidro85@...
classicapes
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Feb 4, 2005
4:25 am
20
Hi all, My CA is in my brainstem -- had a craniotomy to no avail back in '97 after a bleed. Had another bleed in December 2000, after which I was recommended...
Lady Stardust
ldystardust
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Feb 4, 2005
10:15 pm
21
There is a page regarding radiosurgery/gamma knife treatments on the Angioma Alliance website. There's also a current thread on the Community Forum addressing...
Connie Lee
conniehere2002
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Feb 6, 2005
4:38 pm
22
Hey! I am scheduled to have GK on my CA on 2/22. Anyone know what I should do before and during?...
gentleo
Offline Send Email
Feb 8, 2005
6:07 pm
23
Hi Tony, Hope things are going well with you. I had GK yesterday. I went in at 4am and was on my way home b4 10am. It wasn't had. They only pain I...
Kaye McIntosh
gentleo
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Feb 23, 2005
4:07 pm
24
Hi, my name is Sara, and I'm new here. I'm 18, and I'm a college freshman in Alabama. I recently found out that I have an AVM in my left frontal lobe. It ...
Sara
saelenn
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Apr 28, 2005
8:54 pm
25
Hi Sara. My name is Kaye. I live in Marathon, FL(in the keys). I am 47. I don't have an AVM. I have a CA (cavernous angioma). I was diagnosed Christmas...
Kaye McIntosh
gentleo
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Apr 29, 2005
4:06 pm
26
Hi, Kaye. What exactly is gamma knife? I'm not familiar with it, and I haven't found anything about it in the research I've done. Maybe you could give me...
Sara
saelenn
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Apr 29, 2005
4:51 pm
27
... Hi Sara. Did you check the websites I emailed you? Keep in touch. Kaye ... haven't...
gentleo
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May 3, 2005
1:05 pm
28
Yeah, I did. I've been meaning to send you a thank you note, but it's been really busy here at work, and I have no memory. (But at least now I can blame it...
Sara
saelenn
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May 3, 2005
5:08 pm
29
Well, I saw the neurosurgeon this morning, and the verdict is in. I'm going to have a gamma knife procedure on June 13. I have read a lot of the clinical and...
Sara
saelenn
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May 3, 2005
5:10 pm
30
Hi Sara. I had GK 2/22/05. They only uncomfortable part of it is the head frame. It is awkward. When they put it on, I won't lie, it hurts. They use 4 ...
Kaye McIntosh
gentleo
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May 5, 2005
1:35 pm
32
Hi, my name is Darla. My story is about my son, 2 year old Trent, the sweetest little pumpkin head I know. When he was about 9 months old I started to notice...
moonbeamdarla
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Aug 19, 2005
1:28 am
33
Darla, I don't have children with this problem. I, myself, have a capillary telangiectasis on the pons of my brain stem. I just wanted to tell you that my...
Sandi
sandimccann
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Aug 19, 2005
1:35 am
34
Darla, Your Son is in my thoughts & prayers. Tony In a message dated 8/18/2005 6:32:05 P.M. Pacific Daylight Time, moonbeam611@... writes: Hi, my...
kidro85@...
classicapes
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Aug 19, 2005
6:29 am
35
Thank you so much for your thoughts, it would be nice to have answers but this seems extremely rare in pediatrics. Hopefully I will learn something that our...
moonbeam611@...
moonbeamdarla
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Aug 19, 2005
2:38 pm
36
You might want to check out www..angiomaalliance.org. It is a very active website. Kaye ... === message truncated === ...
Kaye McIntosh
gentleo
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Aug 19, 2005
2:55 pm
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