Hi, my name is Darla. My story is about my son, 2 year old Trent, the sweetest little pumpkin head I know. When he was about 9 months old I started to notice...
Darla, I don't have children with this problem. I, myself, have a capillary telangiectasis on the pons of my brain stem. I just wanted to tell you that my...
Thank you so much for your thoughts, it would be nice to have answers but this seems extremely rare in pediatrics. Hopefully I will learn something that our...
oops! just www. ... === message truncated === ____________________________________________________ Start your day with Yahoo! - make it your home page ...
Hi Darla, my name's Cheryl. I saw your posting and thought I'd send you some information to look into. I'm going to give you my story first, then refer you to...
Cheryl, thank you so much for your insights about all of this. We are so confused and just want some answers. Our present plan is to see what the Cincinnati...
Glad I could be a little help. The second opinion should give you the confidence you need to make a decision. Good luck and keep us posted. Vascular ...
Hi, I'm so glad to have found this group! I have a Venous Angioma in my left frontal lobe, and also a "white spot" on each lobe (looked like the size of a...
It all can be very confusing for us as patients and I don't really feel the doctors all agree on the diagnosis/prognosis just due to our conditions being so...
Enter your vote today! A new poll has been created for the neurovascular group: IF YOU HAVE BEEN DIAGNOSED WITH A VENOUS ANGIOMA OF THE BRAIN, WHAT TYPES OF...
neurovascular@yahoogr...
Jan 12, 2006 6:59 am
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Enter your vote today! A new poll has been created for the neurovascular group: IF YOU HAVE BEEN DIAGNOSED WITH A VENOUS ANGIOMA OF THE BRAIN, WHAT PART OF...
neurovascular@yahoogr...
Jan 12, 2006 7:04 am
45
This message is about Human beings, Democracy, UNHCR, Refugees, The Iraqis, Islam, Kurds, Human rights, Respect, Money, Donations, Angelina Jolie, Pavarotti,...
car-accident-suppo8@...
Jan 25, 2006 5:12 pm
46
Hi all, it's nice to find this group and i'm amazed it's so small (another group i'm in for APS started 'round the same time and has 900 members). I was just...
I hate doctors! It seems they play like they know it all, yet really know nothing. First dr says meds because it is causing his seizures (which only causes...
Just curious but where are you from? City & state? I also have a Venous Angioma, mine is located in my right temporal lobe, but i also had a Cavernous ...
I am new to this group. My name is Patricia (Tricia) and I have been searching for a support group now for a couple of months, and do not really know if this...
I was diagnosed with a venous angioma in the front left temporal lobe of my brain about three years ago now. Doctors in my area have told me that it probably...
I have the same thing at left lateral ventricle; I have bouts of extreme vertigo and paresthesia on opposite side (numbness). I definitely have spells of...
I posted you a response a few days ago but it didn't show up so i don't know if you received it or not but I wanted to thank you for responding to my post. You...
By accident my neurologist found from a MRI that I have two angiomas in my brain. I had a follow up CT scan that showed that they are benign. I have not found...
... time. Your vessels are strong and you are in no danger of a bleed or a rupture. That is good news...Do keep an eye on your blood pressure, be aware of...
Hi Patti, It's important to differentiate between a venous angioma and a cavernous angioma. Do you know which you have? A venous angioma is a vein that is...
I don't remember my doctor saying to get yearly MRI's I didn't know I needed them and I was going to turn down the next one offerred to me becuase of the high...
It's not necessarily true that venous angiomas don't cause symptoms because many of us out there are finding that they in fact do. On top of the typical head...
Doctors aren't necessarily concerned...it's not their head...it's yours...I requested the yearly MRI's myself but you could do them less frequently if you...
Half of my right leg was numb for two months. My entire body went numb for a few hours one day. I've had lots of wierd neurological symptoms that's why i went...
See what I mean? The old school Neurologists aren't willing to admit that angiomas are responsible for your symptoms even though they can's scientifically or...
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