Hi, my name is Sara, and I'm new here. I'm 18, and I'm a college freshman in Alabama. I recently found out that I have an AVM in my left frontal lobe. It ...
Hi Sara. My name is Kaye. I live in Marathon, FL(in the keys). I am 47. I don't have an AVM. I have a CA (cavernous angioma). I was diagnosed Christmas...
Hi, Kaye. What exactly is gamma knife? I'm not familiar with it, and I haven't found anything about it in the research I've done. Maybe you could give me...
Yeah, I did. I've been meaning to send you a thank you note, but it's been really busy here at work, and I have no memory. (But at least now I can blame it...
Well, I saw the neurosurgeon this morning, and the verdict is in. I'm going to have a gamma knife procedure on June 13. I have read a lot of the clinical and...
Hi Sara. I had GK 2/22/05. They only uncomfortable part of it is the head frame. It is awkward. When they put it on, I won't lie, it hurts. They use 4 ...
Hi, my name is Darla. My story is about my son, 2 year old Trent, the sweetest little pumpkin head I know. When he was about 9 months old I started to notice...
Darla, I don't have children with this problem. I, myself, have a capillary telangiectasis on the pons of my brain stem. I just wanted to tell you that my...
Thank you so much for your thoughts, it would be nice to have answers but this seems extremely rare in pediatrics. Hopefully I will learn something that our...
oops! just www. ... === message truncated === ____________________________________________________ Start your day with Yahoo! - make it your home page ...
Hi Darla, my name's Cheryl. I saw your posting and thought I'd send you some information to look into. I'm going to give you my story first, then refer you to...
Cheryl, thank you so much for your insights about all of this. We are so confused and just want some answers. Our present plan is to see what the Cincinnati...
Glad I could be a little help. The second opinion should give you the confidence you need to make a decision. Good luck and keep us posted. Vascular ...
Hi, I'm so glad to have found this group! I have a Venous Angioma in my left frontal lobe, and also a "white spot" on each lobe (looked like the size of a...
It all can be very confusing for us as patients and I don't really feel the doctors all agree on the diagnosis/prognosis just due to our conditions being so...
Enter your vote today! A new poll has been created for the neurovascular group: IF YOU HAVE BEEN DIAGNOSED WITH A VENOUS ANGIOMA OF THE BRAIN, WHAT TYPES OF...
neurovascular@yahoogr...
Jan 12, 2006 6:59 am
44
Enter your vote today! A new poll has been created for the neurovascular group: IF YOU HAVE BEEN DIAGNOSED WITH A VENOUS ANGIOMA OF THE BRAIN, WHAT PART OF...
neurovascular@yahoogr...
Jan 12, 2006 7:04 am
45
This message is about Human beings, Democracy, UNHCR, Refugees, The Iraqis, Islam, Kurds, Human rights, Respect, Money, Donations, Angelina Jolie, Pavarotti,...
car-accident-suppo8@...
Jan 25, 2006 5:12 pm
46
Hi all, it's nice to find this group and i'm amazed it's so small (another group i'm in for APS started 'round the same time and has 900 members). I was just...
I hate doctors! It seems they play like they know it all, yet really know nothing. First dr says meds because it is causing his seizures (which only causes...
Just curious but where are you from? City & state? I also have a Venous Angioma, mine is located in my right temporal lobe, but i also had a Cavernous ...
I am new to this group. My name is Patricia (Tricia) and I have been searching for a support group now for a couple of months, and do not really know if this...
I was diagnosed with a venous angioma in the front left temporal lobe of my brain about three years ago now. Doctors in my area have told me that it probably...
I have the same thing at left lateral ventricle; I have bouts of extreme vertigo and paresthesia on opposite side (numbness). I definitely have spells of...
I posted you a response a few days ago but it didn't show up so i don't know if you received it or not but I wanted to thank you for responding to my post. You...
By accident my neurologist found from a MRI that I have two angiomas in my brain. I had a follow up CT scan that showed that they are benign. I have not found...
... time. Your vessels are strong and you are in no danger of a bleed or a rupture. That is good news...Do keep an eye on your blood pressure, be aware of...
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