neurovascular : Messages : 1-30 of 119

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30	Hi Sara. I had GK 2/22/05. They only uncomfortable part of it is the head frame. It is awkward. When they put it on, I won't lie, it hurts. They use 4 ...	Kaye McIntosh gentleo	May 5, 2005 1:35 pm
29	Well, I saw the neurosurgeon this morning, and the verdict is in. I'm going to have a gamma knife procedure on June 13. I have read a lot of the clinical and...	Sara saelenn	May 3, 2005 5:10 pm
28	Yeah, I did. I've been meaning to send you a thank you note, but it's been really busy here at work, and I have no memory. (But at least now I can blame it...	Sara saelenn	May 3, 2005 5:08 pm
27	... Hi Sara. Did you check the websites I emailed you? Keep in touch. Kaye ... haven't...	gentleo	May 3, 2005 1:05 pm
26	Hi, Kaye. What exactly is gamma knife? I'm not familiar with it, and I haven't found anything about it in the research I've done. Maybe you could give me...	Sara saelenn	Apr 29, 2005 4:51 pm
25	Hi Sara. My name is Kaye. I live in Marathon, FL(in the keys). I am 47. I don't have an AVM. I have a CA (cavernous angioma). I was diagnosed Christmas...	Kaye McIntosh gentleo	Apr 29, 2005 4:06 pm
24	Hi, my name is Sara, and I'm new here. I'm 18, and I'm a college freshman in Alabama. I recently found out that I have an AVM in my left frontal lobe. It ...	Sara saelenn	Apr 28, 2005 8:54 pm
23	Hi Tony, Hope things are going well with you. I had GK yesterday. I went in at 4am and was on my way home b4 10am. It wasn't had. They only pain I...	Kaye McIntosh gentleo	Feb 23, 2005 4:07 pm
22	Hey! I am scheduled to have GK on my CA on 2/22. Anyone know what I should do before and during?...	gentleo	Feb 8, 2005 6:07 pm
21	There is a page regarding radiosurgery/gamma knife treatments on the Angioma Alliance website. There's also a current thread on the Community Forum addressing...	Connie Lee conniehere2002	Feb 6, 2005 4:38 pm
20	Hi all, My CA is in my brainstem -- had a craniotomy to no avail back in '97 after a bleed. Had another bleed in December 2000, after which I was recommended...	Lady Stardust ldystardust	Feb 4, 2005 10:15 pm
19	Kaye, Hi again, its Tony, unfortunately nobody in this Cavernous angioma group ever responds, or maybe we are the group- ha, if there is anybody else the...	kidro85@... classicapes	Feb 4, 2005 4:25 am
18	Hi there. Anyone have had the gamma knife for treatment of their CA? I just saw a nerosurgeon that highly recommended it for mine. Does anyone have any...	gentleo	Feb 3, 2005 10:40 pm
17	Hi group. I am Kaye. I have a cavernous angioma in my left temporal lobe. It is 2cm. I had a seizure Christmas. Medication have the seizures under...	gentleo	Jan 27, 2005 2:54 pm
16	Hi everybody, I'm new to the group. I have a Cavernous Angioma in my right Temporal Lobe. Has anybody in here had surgery for theres? Has anybody in here had...	kidro85@... classicapes	Jan 25, 2005 3:44 pm
15	I was diagnosed with CA after a bleed in 1994. I bled again in 1998 after I discovered I was pregnant. Saw doctor at Emory University in Atlanta, GA and was...	cow31201	Feb 12, 2004 4:58 pm
14	Hi BJ, Please try the Angioma Alliance website, the only organization specifically for those affected by cavernous angioma. We have an active Community Forum...	Connie Lee conniehere2002	Oct 20, 2003 11:38 am
13	Hi BJ: I have a telangiectasia on the brain stem. It is very small and I have had two local specialists tell me that I should not consider surgery and/or other...	Sandi sandimccann	Oct 20, 2003 10:30 am
12	Hi, My Mom was just diagnosised with Cavernous Angioma, she has seizures with it. She is now having a third medical opinion because the previous two were...	B.J. bjc112876	Oct 20, 2003 7:25 am
11	&nb sp; �The most effective anti-aging therapy.� Dr. Thierry Hertoghe, President of the European Academy for Quality Life and Longevity Medicine After the...	PureGHR15 buypureghr15	May 7, 2002 8:29 pm
10	Hello Kris. Just read your interesting account of your daughter's AVM. I have a related disorder (AVF - Arteriovenous Fistula), so I do a lot of reading on...	tds paix12	Apr 2, 2002 5:51 pm
9	OOPS! Now that I am reading other stories I realize this isn't the right place for me. My daughter has Pulmonary AVM. Sorry about that. :o( Kris Scott Jordan...	Scott & Kristi Pahnke jordan_hayle...	Apr 2, 2002 5:41 pm
8	Hello! My name is Kris. I am the Mom of 2. Jordan is 5 and Hayleigh is 23 months.I am absolutely amazed that I finally found a group for rare neurovascular...	Scott & Kristi Pahnke jordan_hayle...	Apr 2, 2002 5:34 pm
7	Just by luck, I ran across this group and I am so glad I found you. I was diagnosed approximately three months ago with what my neurologist and neurosurgeon...	sandimccann	Feb 6, 2002 1:57 am
6	Best erotic comics for AVS members: http://www.comics100.non.ru __________________________________________________ Terrorist Attacks on U.S. - How can you...	Light Nicky wilky_nox@...	Sep 19, 2001 1:14 pm
5	I know that AVM's are very rare, but I was surprised to find so few members in this group. My daughter had an episode where her AVM ruptured and was...	cherithepea@...	Aug 21, 2001 4:53 pm
4	Union 'Narodny credit'. This credit union pay annual 36%. Keep in mind. http://www.all-lolitas.com/cgi-bin/out.cgi?credit ...	Maya Dron maya_roxxy@...	Jul 11, 2001 7:58 pm
3	Lara, Sorry to see this group has not taken off, but I was glad to come across it nonetheless. I was diagnosed w/a CA in my right parietal motor strip after a...	mlpoleyu@...	Dec 11, 2000 2:47 am
2	I've been sick for five years now - for the first two and a half the doctors kept on telling me I was just crazy - and then I walked into the doctors office...	feklara@xxx.xxx	Jan 10, 2000 1:20 pm
1	Hello, There is a new survey for the neurovascular ... Have you or a loved ont been diagnosed with any of the following medical conditions? o cavernous angioma...	neurovascular-owner@x...	Jan 10, 2000 8:25 am

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