Amazing..I have the same thing on the right ventricle deep in white
matter with vertigo and paresthesia on opposite side. I had a slight
bleed almost 10 years ago. I am glad that now after 10 years I've
found others with a similiar issue. The neurosurgeons weren't much
impressed..this is more common than I thought. Unfortunately, when I
am tired and stressed, the symptoms can be very scary. The bleed
debilitated me for days (I was only in my 20s, and I was very dizzy
with poor communication..unable to move my leg on left side after
having a work meeting). I definitely take time to get MRI yearly.

--- In neurovascular@yahoogroups.com, "kimchoiniere"
<kimchoiniere@...> wrote:
>
> I have the same thing at left lateral ventricle; I have bouts of
> extreme vertigo and paresthesia on opposite side (numbness). I
> definitely have spells of extreme dizziness and balance issues that
> I've had since early 20s; I saw two neurosurgeons that told me to
> live with these symptoms (said it could be caused by large
angioma);
> mine cannot be operated on no matter what (it is deep in white
> matter). It is not cavernous and has not changed for 11 years (11
> years ago I had a slight bleed; It was similiar to a small stroke;
> although this is very rare with angiomas that are not cavernous). I
> have an MRI every year. Good luck with symptoms. On dizzy days, I
try
> not to drive too much; I rest.
>
>
>
> --- In neurovascular@yahoogroups.com, "mamapoulette"
> <vmcnierney8743@> wrote:
> >
> > I was diagnosed with a venous angioma in the front left temporal
> lobe
> > of my brain about three years ago now. Doctors in my area have
told
> me
> > that it probably wouldn't have been found as these things don't
> have
> > symptoms as a rule but mine did. It's not cavernous at this point
> and
> > my neurologist monitors it with yearly MRIs but after years of
> > intolerable headaches which were written off as migrains I came
> down
> > with a month long bout of vertigo with no cure, followed by
another
> one
> > three months later. It took many months of playing with the right
> meds
> > and many many tests to rule out every known thing known to cause
> > balance failure the doctors could come up with and the doctors
are
> > still not ready to say that this unusual vein pattern in my head
> could
> > have caused it. To this day if I try to back off the medication
> which
> > is now 100mg of Topamax (which thankfully controls the headaches
> and
> > keeps me on my feet upright)I will still lose my balance and spin
> like
> > a top. Does anyone else out there have a similar story? Because
> from
> > what I've learned the neurologists really don't know too much
about
> > this type of thing except that it's better off left alone unless
it
> > becomes cavernous.And then a person pretty much is left to feel
as
> > though they have a time bomb ticking away inside their head.
> >
>