I know that AVM's are very rare, but I was surprised to find so few
members in this group. My daughter had an episode where her AVM
ruptured and was temporarily paralyzed on her right side and lost her
ability to speak. It was a very traumatic time for our family. She
eventually had the Gamma Knife surgery, which 3 years later after many
follow-up angiograms, revealed that it had not worked and that the AVM
was still there. We again tried the Gamma Knife and do not know yet
if it has obliterated. We will have our first angio. in July of 2002.
She will be 8 at that time. These have been hard years with all of
the waiting and praying. If there are others with children that have
an AVM or similar story, I would be interested. My prayers are with
each and every one of you. You are survivors.