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re.venous angioma in the brain   Message List  
Reply | Forward Message #51 of 120 |
Re: re.venous angioma in the brain

I have the same thing at left lateral ventricle; I have bouts of
extreme vertigo and paresthesia on opposite side (numbness). I
definitely have spells of extreme dizziness and balance issues that
I've had since early 20s; I saw two neurosurgeons that told me to
live with these symptoms (said it could be caused by large angioma);
mine cannot be operated on no matter what (it is deep in white
matter). It is not cavernous and has not changed for 11 years (11
years ago I had a slight bleed; It was similiar to a small stroke;
although this is very rare with angiomas that are not cavernous). I
have an MRI every year. Good luck with symptoms. On dizzy days, I try
not to drive too much; I rest.



--- In neurovascular@yahoogroups.com, "mamapoulette"
<vmcnierney8743@...> wrote:
>
> I was diagnosed with a venous angioma in the front left temporal
lobe
> of my brain about three years ago now. Doctors in my area have told
me
> that it probably wouldn't have been found as these things don't
have
> symptoms as a rule but mine did. It's not cavernous at this point
and
> my neurologist monitors it with yearly MRIs but after years of
> intolerable headaches which were written off as migrains I came
down
> with a month long bout of vertigo with no cure, followed by another
one
> three months later. It took many months of playing with the right
meds
> and many many tests to rule out every known thing known to cause
> balance failure the doctors could come up with and the doctors are
> still not ready to say that this unusual vein pattern in my head
could
> have caused it. To this day if I try to back off the medication
which
> is now 100mg of Topamax (which thankfully controls the headaches
and
> keeps me on my feet upright)I will still lose my balance and spin
like
> a top. Does anyone else out there have a similar story? Because
from
> what I've learned the neurologists really don't know too much about
> this type of thing except that it's better off left alone unless it
> becomes cavernous.And then a person pretty much is left to feel as
> though they have a time bomb ticking away inside their head.
>





Wed Jan 24, 2007 3:16 pm

kimchoiniere
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Message #51 of 120 |
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I was diagnosed with a venous angioma in the front left temporal lobe of my brain about three years ago now. Doctors in my area have told me that it probably...
mamapoulette
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Jan 24, 2007
2:34 am

I have the same thing at left lateral ventricle; I have bouts of extreme vertigo and paresthesia on opposite side (numbness). I definitely have spells of...
kimchoiniere
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Jan 24, 2007
3:24 pm

Amazing..I have the same thing on the right ventricle deep in white matter with vertigo and paresthesia on opposite side. I had a slight bleed almost 10 years...
kimchoiniere
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Feb 26, 2007
10:51 pm
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