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re.venous angioma in the brain   Message List  
Reply | Forward Message #50 of 120 |
I was diagnosed with a venous angioma in the front left temporal lobe
of my brain about three years ago now. Doctors in my area have told me
that it probably wouldn't have been found as these things don't have
symptoms as a rule but mine did. It's not cavernous at this point and
my neurologist monitors it with yearly MRIs but after years of
intolerable headaches which were written off as migrains I came down
with a month long bout of vertigo with no cure, followed by another one
three months later. It took many months of playing with the right meds
and many many tests to rule out every known thing known to cause
balance failure the doctors could come up with and the doctors are
still not ready to say that this unusual vein pattern in my head could
have caused it. To this day if I try to back off the medication which
is now 100mg of Topamax (which thankfully controls the headaches and
keeps me on my feet upright)I will still lose my balance and spin like
a top. Does anyone else out there have a similar story? Because from
what I've learned the neurologists really don't know too much about
this type of thing except that it's better off left alone unless it
becomes cavernous.And then a person pretty much is left to feel as
though they have a time bomb ticking away inside their head.




Wed Jan 24, 2007 2:30 am

mamapoulette
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Message #50 of 120 |
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I was diagnosed with a venous angioma in the front left temporal lobe of my brain about three years ago now. Doctors in my area have told me that it probably...
mamapoulette
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Jan 24, 2007
2:34 am

I have the same thing at left lateral ventricle; I have bouts of extreme vertigo and paresthesia on opposite side (numbness). I definitely have spells of...
kimchoiniere
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Jan 24, 2007
3:24 pm

Amazing..I have the same thing on the right ventricle deep in white matter with vertigo and paresthesia on opposite side. I had a slight bleed almost 10 years...
kimchoiniere
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Feb 26, 2007
10:51 pm
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