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Just curious but where are you from? City & state? I also have a Venous Angioma, mine is located in my right temporal lobe, but i also had a Cavernous Angioma in the same area. I had Brain surgery that was very succesful on sept 1st 2005 to remove the Cavernous Angioma, but they left the Venus in there. I spoke to many surgeons and depending where they are located they usually do more damage when they remove the Venus angioma's rather then leaving them.
I'm not sure if they can get worse, I believe it depends where its located.
I'm currently on Depakote ER 1000 MG a day and 3000mg of Nuerontin a day. That has stopped my seizures, Also make sure your husband has a healthy & safe Blood pressure & chlosterol.
Tony
In a message dated 4/24/2006 7:43:54 P.M. Pacific Daylight Time, melissamolnar@... writes:
I hate doctors! It seems they play like they know it all, yet really
know nothing. First dr says meds because it is causing his seizures
(which only causes trembling and numbness in the hands). Then says
have to get MRA and see neurosurgeon.
Now, dr changed mind. Just take meds, no MRA and if we see a
neurosurgeon, they usually don't do anything for this problem.
Any advice?
Do surgeons fix something like this?
Can it get worse?
Is it worth taking the meds for such a small problem?
SO FRUSTRATING!
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