Hi all,
it's nice to find this group and i'm amazed it's so small (another
group i'm in for APS started 'round the same time and has 900
members).
I was just wondering if i threw myself out there whether there was
anyone who could tell me anything (thank you in advance!!!). i'm 24
female and diagnosed with chronic fatigue syndrome or CFS in 2001. i
had one MRI done in april 2001 which showed i had i quote: "A few
small blood vessels are noted in the postero-infero-medial part of
the left basal ganglia and a larger blood vessel is seen running
interiorly from this region. The findings are suggesting a venous
angioma in this region."
Recently i have re opened investigation into myself as for a long
time my family told me to give up investigating but i have been
having such severe migraines and neurological symptoms that i just
knew inside something was wrong with my brain, i didn't know what.
i was first made aware of the auto immune disease Hughes Syndrome or
antiphospholipid syndrome and read on that. i found from APS patients
how important it was to have an MRI so i dug my report out as said
above and read those two lines for the first time. Prior to this I
was told my scan was "normal" and now i can only kick myself for my
stupidity.
i was wondering what anyone thought of my case and how i should go
about investigating further. what should I do?
VL