It all can be very confusing for us as patients and I don't really feel the
doctors all agree on the diagnosis/prognosis just due to our conditions
being so "new" to them and they really don't know all about these problems
yet. From what I have learned, the white spots could mean the start the of
MS.

I have a SIL who works for a neurologist and that is what she tells me they
look for first in MS patients.

I hope you get some definitive answers but don't be surprised if a lot of
what you get told seems to be confusing, unfortunately.

I certainly would continue to have regular MRIs (yearly at least) with
contrast to keep a close check on all these findings, particularly if you
begin to show more "white spots" on the MRI. I have a friend who has MS and
this seems to be what appears with MS from my understanding.

Best wishes,
Sandi
----- Original Message -----
From: "cholm5" <arenzano1@...>
To: <neurovascular@yahoogroups.com>
Sent: Friday, September 09, 2005 12:30 AM
Subject: [neurovascular] Venous angioma and "white spots"


> Hi,
>
> I'm so glad to have found this group!
>
> I have a Venous Angioma in my left frontal lobe, and also a "white
> spot" on each lobe (looked like the size of a pea). (I had an MRI
> very recently, with contrast.)
>
> Supposedly they don't mean anything? The VA poses no risk, neither do
> the white spots, and the VA does not emit the seizures....so one
> doctor says. The others say that the Venous Angioma IS where my aura
> seizures are coming from. Websites tell me the Venous Angiomas are
> synonymous with AVMs, and the "white spots" could mean the start of MS?
>
> It's all very confusing!
>
> Anyone have any experience with anything like this? I want to sort
> this all out.
> Thank you,
> Chrisanne in MN
>
>
>
>
>
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