Hi, my name is Sara, and I'm new here. I'm 18, and I'm a college
freshman in Alabama.

I recently found out that I have an AVM in my left frontal lobe. It
started about a year ago when I started having random episodes where
I would pass out cold for several minutes with no warning. I went
to my GP, and the first two times he wasn't concerned. I'm
hypoglycemic, have a heart murmur, and have very low blood
pressure. Both times, my blood sugar levels were at the low end of
normal, and my blood pressure was around 90/60. He said it was
probably just a combination of low blood sugar and low blood
pressure.

But the third time it happened, about a month and a half ago, he
referred me to a neurologist because he was concerned that I might
be having seizures. The EEG came up normal, but they found
something abnormal in the MRI.

Since then, I've had a head CT, a head CT with dye contrast, and a
head angiogram with dye contrast. They found an AVM about 1" x 1".
Tomorrow I go in for lab work and a 3-D CT scan, and on May 5th I
finally see the neurosurgeon.

I'm looking for whatever information anyone can share because the
doctors aren't giving me much information. I got more information
from my psychiatrist than I got from my neurologist. I've done a
good bit of research on the internet, but I hoped other people with
the same experiences could help me out and let me know what to
expect.

Thanks,
Sara