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Hi all,
My CA is in my brainstem -- had a craniotomy to no avail back in '97 after a bleed. Had another bleed in December 2000, after which I was recommended to look into the Gamma Knife as well. I never did it, the neurosurgery was more than bad enough! Fortunately I haven't had another bleed (yet).
Has anyone been to the angioma alliance web site? They have some good information (mine is now out of date I would assume)... they say there that the gamma knife isn't recommended, but I really don't know.
If anyone else has done the gamma knife thing, I'd appreciate the insight as well.
-Lara
PS I don't have web access at home, so it is difficult for me to respond. Please be understanding!
kidro85@... wrote:
kidro85@... wrote:
Kaye,Hi again, its Tony, unfortunately nobody in this Cavernous angioma group ever responds, or maybe we are the group- ha, if there is anybody else the group then speak up.I personally going to UCLA in 3 weeks for a consult with the top neurosurgeon there, I'll ask him about the Gamma Knife.I forgot, where is your CA? What part of the brain? and is it within your brain or on the base of the brain?Good luck and write back-- Tony in Vegas -- 70 sunny & clear todayHi there. Anyone have had the gamma knife for treatment of their
CA? I just saw a nerosurgeon that highly recommended it for mine.
Does anyone have any information on this? If you do please let me
know. I see another neuro next week for his opinion.
Thanks,
KayeIn a message dated 2/3/2005 3:06:13 P.M. Pacific Standard Time, gentleo@... writes:Hi there. Anyone have had the gamma knife for treatment of their
CA? I just saw a nerosurgeon that highly recommended it for mine.
Does anyone have any information on this? If you do please let me
know. I see another neuro next week for his opinion.
Thanks,
Kaye
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