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Hi BJ,
Please try the Angioma Alliance website, the only organization specifically for those affected by cavernous angioma. We have an active Community Forum with over 70 participants (under Community on the main menu). The url is www.angiomaalliance.org. It's a great place to get questions answered.
Connie
-----Original Message-----Hi,
From: B.J. [mailto:bjc112876@...]
Sent: Monday, October 20, 2003 2:26 AM
To: neurovascular@yahoogroups.com
Subject: [neurovascular] hi..anyone have Cavernous Angioma?
My Mom was just diagnosised with Cavernous Angioma, she has
seizures with it. She is now having a third medical opinion because
the previous two were terrible doctors, one of which left her alone
on the exam table while she was having one.
Is there anyone out there who has this? She got it as an adult, a
sudden onset. I have found a few websites but no "one on one" contact
with anyone who has it.
You can either e-mail me directly or post on the site.
thank you-
bj
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