Hi All, Please check out my blog http://kwilday.blogspot.com/ and if you have a blog at blogger.com or somewhere else, please send it, so I can see it and...
No, I don't believe tumors increase in size as you get older, but that doesn't mean that there can't be tumors that do increase in size over several years. If...
Just a reminder. Its the first Sunday of the month and again I am the guest on www.eyeonthefutureradio.com Last month the link didn't work so we are going to...
I don't know. I think I have nf 1 because the tumors grow under the skin. But it mentions things about ringing in the ear as being nf2 and I have had that...
Kristy- Usually the hallmark sign of NF2 is bilateral acoustic neuromas. (benign tumors in the head on both the right and left cranial nerves.) Have you had...
Actually Kristy, my husband met a fellow at the CTF conference who had NF1 and all his tumors grew inside of his body. To look at him you would not know he...
I have had an mri done on my head many times; no signs of tumors, but I do have a few on the outside where I can feel them when I have smoothing my hair out....
Hey Everyone, How are you all doing? I hope you are doing well. Today I am going to the Los Angeles Zoo with a friend and my parents. This was my birthday...
wow happy birthday hope u have tons of fun in the zoo take picz so u can
post them and we can see u had a lot of fun take care adn be safe TESSY, DESTINY,...
My dad took pictures, so will post those when he give me them to put on my computer. I am not very good at taking pictures when we go to the zoo, so I didn't...
sorry for not posting but have been busy working recently My Financee found out yesterday she is about 7 months pregnant, we are going for a scan tomorrow to...
HEY THAT'S AWESOME!!!!!!!!!!!!!! Congrats. I pray that everything goes well, all the best wishes to you and yours! Jim Tulino **************Recession-proof...
what heppen what is awesome?? ... From: Tracy Galloway Date: 20/05/2009 10:17:59 p.m. To: neurofibromatosis2@yahoogroups.com Subject: Re: [Neurofibromatosis]...
my child will be 1 years old on Tomorrow 22nd It looks like he has inherited the condition as there are a few sign of it i.e. cafe-au-lait spots and a twin...
Not everyone with NF gets learning difficulties - the figure is around 60 percent I believe. I am quite badly affected cosmetically, although I have seen...
i have nf1 and my older daugher has it too and also has add and learning
disability but with the med the dr gave her for the add has helpng her with
her...
Congratulations Brian & fiancee on news of a new baby on the way! re: Steve- the cafe-au-lait spots, twin crown & other signs of NF1 often don't mean a lot....
I am planning a trip to Cedar Point in Sandusky Ohio, on aug 28-30. I am inviting everyone with NF or affected by it to come and make this a NF Gathering. I...
I am planning a trip to Cedar Point in Sandusky Ohio, on aug 28-30. I am inviting everyone with NF or affected by it to come and make this a NF Gathering. I...
oh boy i would love to go but the problem is money i dont have the moeny to
pay for the tickets or anything is to bad i would love ot meet other people
that...
Hi Everyone! Has anyone tried using Skype and doing a conference call? Considering that most of us can't afford to travel to meet each other, Skype conference...
hi all, I am male, 30 and have nf1. I have number of bumps around 150.Mostly on chest and back .Some large (around 10-12 are of the size of pea) and mostly ...
sometimes having them remove for some reason can trigger more to grow, most Dr's won't remove them unless they cause pain or other life threating problems,...
Hi Jhon, Thanks a lot for the reply, this would really help me There is one the largest and that is on my left thigh, i some time have pain with this. That is...
well i do have skype andi use it to chat with my mother that she lives in
mexico and im in south tx i would use it but im not sure if i would like to
people to...
We used Skype when our son was in Morocco for 2 months. Sometimes we would set the laptop at the dinner table and talk with him while we had dinner. It was...
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