Hi Everyone, Just to let you know that I am going on "No Mail" because I am not going to be around for a while. I do not know how long. Going through a lot...
I do not know how NF affects tattoos, but I had similar experience to Tessy with my 2 pregnancies. I did not have any real symptoms of NF until I got...
Have you had an mri to see if there's a tumor causing the back pain? It was a problem for my mom and she had a tumor eating at her spine that cuold have made...
My mom also had a tumor on her spine that was eating it to the size of a pencil and she was in severe pain. If it had not been for the surgery; she would have...
Well going by my own experience i will have to say YES. Im sure i have read somewhere that it is well know for people who suffer with NF also suffer from...
wow! It can be scary living with NF. ~Kristy~ I'm using flowerlillies1aol.com as my primary personal email now, but I use hotmail to check my aol email, so it...
cant it just. Unfortunately there are so many "side effects" living with NF (is probably the best word i can come up with) i.e. dyslexia for one and why is...
I think I have dyslexia and I think it runs in my family; not so sure that I have it because of nf though. I may. My dad has it and so does my sister, but my...
Thank you for all your input =) I have had an MRI of my spine, this was 2 years ago now, and it was an open MRI...so I don't know if the results come out...
Hi All, Please check out my blog http://kwilday.blogspot.com/ and if you have a blog at blogger.com or somewhere else, please send it, so I can see it and...
No, I don't believe tumors increase in size as you get older, but that doesn't mean that there can't be tumors that do increase in size over several years. If...
Just a reminder. Its the first Sunday of the month and again I am the guest on www.eyeonthefutureradio.com Last month the link didn't work so we are going to...
I don't know. I think I have nf 1 because the tumors grow under the skin. But it mentions things about ringing in the ear as being nf2 and I have had that...
Kristy- Usually the hallmark sign of NF2 is bilateral acoustic neuromas. (benign tumors in the head on both the right and left cranial nerves.) Have you had...
Actually Kristy, my husband met a fellow at the CTF conference who had NF1 and all his tumors grew inside of his body. To look at him you would not know he...
I have had an mri done on my head many times; no signs of tumors, but I do have a few on the outside where I can feel them when I have smoothing my hair out....
Hey Everyone, How are you all doing? I hope you are doing well. Today I am going to the Los Angeles Zoo with a friend and my parents. This was my birthday...
wow happy birthday hope u have tons of fun in the zoo take picz so u can
post them and we can see u had a lot of fun take care adn be safe TESSY, DESTINY,...
My dad took pictures, so will post those when he give me them to put on my computer. I am not very good at taking pictures when we go to the zoo, so I didn't...
sorry for not posting but have been busy working recently My Financee found out yesterday she is about 7 months pregnant, we are going for a scan tomorrow to...
HEY THAT'S AWESOME!!!!!!!!!!!!!! Congrats. I pray that everything goes well, all the best wishes to you and yours! Jim Tulino **************Recession-proof...
what heppen what is awesome?? ... From: Tracy Galloway Date: 20/05/2009 10:17:59 p.m. To: neurofibromatosis2@yahoogroups.com Subject: Re: [Neurofibromatosis]...
my child will be 1 years old on Tomorrow 22nd It looks like he has inherited the condition as there are a few sign of it i.e. cafe-au-lait spots and a twin...
Not everyone with NF gets learning difficulties - the figure is around 60 percent I believe. I am quite badly affected cosmetically, although I have seen...
i have nf1 and my older daugher has it too and also has add and learning
disability but with the med the dr gave her for the add has helpng her with
her...
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