Hi my name is Steven Prebus and i looking for groups or  individuals with nf 2 in southeast  Michigan area, really want to met and talk with people who...
hi steve im tessy i have nf 2 also sorry im not in u area i live south tx but we can still talk i know what is like i had it all over my face my hands and...
hi Tessi and thank you for writing back,reading your story about how the PARENTS treat you and you daughters makes me sick makes me cry for starters what kind...
Just thought I'd pop on and say Hello and welcome Steve.. Am Michelle and newer to the group. I am 34 years old and married with 4 children all 5 of us have...
hi steve thanks for what u said well my tumors start to show since i had my first daughter adn with my second it got worst but i can tell u i dont regreat...
hi steve, im still new to the group so forgive if we all ready have one but i would love to have a live group chat,my share info we might have or to just talk....
... I'd be interested. Not a whole lot of free time but, I would. I am sure they are out there but a specific time and day would be nice. Keep a post if...
I am from Traverse City, Michigan. I have been diagnosed with neurofibromatosis type 2 since I was 18. I am now 37. I have had many surgeries..  I am...
Hi! I am 42 and live in Lincolnton, NC. I did try the Xango Juice since a friend purchased the bottle for me ($29 I think?) to try in hopes it would help me....
Hi, Becky. I like your nickname "tumorfarmer". :) I do feel the same way. :) Thnak you for your email response. I appreciate your information and...
my questions is about anyone that is suffer hearing loss or has lost thier hearing, i think im starting to have severe ear problems can any one please explain...
I have heard of people loosing thier hearing but, IÂ haven't as of yet.. (knock on wood) I do however hear my pulse in my ear sometimes.. Â I'd call...
People stare at me. Big Whup! I saw a show a long time ago called "In search of" There were people with nf. They were all talking about wearing long sleeve...
... summer time i wear shorts and short sleeves if others dont like what they see let them stay hidden i be to busy enjoying my life to let them get to me...
Yes I've had the itching my whole life! I am NF2 positive and considered NF1 positive also- my nieces and I were part of a study on NF1 & NF2 at Primary...
I had, I am nf1 with around 8-10 coffer marks and 100+ neurofobromas on my mostly on my chest, belly and back, Went to a dentist and had 2 root canals, and...
Hello all 32 year old male from NY with 2 questions ? believe that I have NF 1 (not sure) anyone ever hear anything negative about a patient with NF getting a...
I don't know if always. But it was the case with my dad myselfe & it looks that way with my son, he is 30 now. So in my family it is 3 for 3. Terry ... From:...
hi I ma 30 male nd have nf1 i am not sure about tattoos but your question "with a time the severity of their case worsens... does anyone one if this is always...
well yes thats my case i have nf 1 and after my 2 pregnancies got worst now i had neurofebromas on my face my chest my hands all over and to be honest that...
i have nf myself no tattoos yet but i have friends with nf with lots of tattos some places wont do it  would say ask your docter but they will say not to...
no i would not put a tattoo im a mother of 2 girls and i would not like them to have them either i respect the once that do but personal i would not do it. ...
Thank you very much for everyone's responses. I truly appreciate it!. have a great weekend **************A Good Credit Score is 700 or Above. See yours in just...
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