Genetic experts and specialists are trained to counsel NF patients by encouraging them NOT to reproduce. Some doctors and specialists appear to be unfeeling...
My fiance and I have been talking about having a baby. I have NF1 and know that my chances of passing it on to our child is 50%. We have been looking at...
Hi Justin  This is hard place to be in. I have NF1. My wife & I have a son "now 30". I passed it onto him. My Dad tried talking me into not having kids. He...
I am a female with NF and have had two children (now older) without NF. My father has the NF gene and had five children and only two of us inherited it. My NF...
... and ... time ... can ... of my ... the ... My name is Melissa. I also have NF1. For the longest time I have wanted to be a mom. I am 34 and I had been dead...
Hello all I am a 31 year old male, with NF, my dad also has NF, at the time when my parents had me, they didn't know he had NF. after having me and find out...
I am 36 and have NF1. I have had 4 wonderful children and only one of them has NF1. The thing is she has gone through more than i have ever. She has gone...
Thank you Nikki !!!!!! **************New year...new news. Be the first to know what is making headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026)...
I want to thank everyone for their responses. I appreciate the time and effort that went into responding...they were so detailed and helpful. I'm hoping I'll...
well i can tell u from my expariance i do have nf 2 and my first daughter has it is very mild just like me and my second daghter dosent have it with my first...
- Well We have 3 Kids and our oldest got diagnosed with NF at 6 months old the other 2 have not been. Dan was diagnosed I believe at 9 years and back then they...
Hi Below is a link to Dr. Hubert Weinberg results and other information regarding the procedure. I posted about him in an earlier post. Consider your company...
I actually swa this Dr. Speak in New Yourk at the annual chapter affiliate council meetiong. He gave those of us attending all this information and actually...
wow i wish i can go see this dr i do really need serous work on my face my chest and my back too my hands can u send me soem info to my email here is...
Hi, my name is Michelle and am 33 married to an amazing man named Rob we have 4 children. My 4 children as well as myself have NF1. I have been reading more...
Hi Michelle and welcome! Know that you are not alone with your feelings. We all who have this disorder go through our rough times. As far as I know about the ...
Welcome to the group. I am Nikki, a single mom of four. I have NF1 and so does one of my kids. She has also under gone chemotherapy for an Optic Glioma behind...
Am not really sure where you are from but, there is a doctor at Cleveland Clinic that specializes in NF1 and 2 he is wonderful and seems to know all the...
Hello Everyone, My name is Kristy and I am new to your group.? I have neurofibromatosis.? My mom has it and my younger sister has it.? My older brother and his...
Hi Kristy  My name is Terry. My father passed NF 2 onto my brother & I and I passed it onto my son. Terry ... From: Kristy Wilday <flowerlillies1@...> ...
hi Kristy i have it but not my mom or my father but i did pass it to my older daughter shes 7 and my younger daughter did not have it, im so glad i joing this...
Sorry about that.? I tried to proof read my errors and went to spell check and the next thing I knew, it said message sent.? That was weird. ~Kristy~ ... From:...
Hi Terry, Thanks for sharing.? I am really not sure which type I have.? Maybe some of each.? All of my mom tumros are outer though, and she has them from head...
Hi Tessy and all, Hope you don't mind this being long!!!! It's the same way in my mom's family.? None of her brothers and sisters had it and neither her mother...
HI KRISTY MY NAME IS ALAN I TO HV NF2 IM48 I HAV A SON25 WIYH NF A DAUGHTER 24 SHE DOSNT HAV NFHAV YOU EVER BEEN TO THE NF CHAT ROOM IF NOT USHOULD CHECK IT...
Hi Kristy & everyone! I'm Rebecca or Becky, whichever you remember better. I'm also known as "Tumorfarmer" Yep! You know why! LOL :o) I have NF2 severely, and...
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