i have a 4 year old little girl that has nf1 and she just started having this eye blinking thing going on and i was just wanting to see if you guys think this...
i have a question about a month or so someone mention some dr in new yourk that can help with the nf with some surgery can someone send me the info i really...
Hi Tessy, here some info: Greetings, Wilna en Leo, Arnhem, The Netherlands. McKay McKinnon, MD Clinical Assistant Professor of Surgery Department of Surgery ...
thank you but it was another dr different name in new your city i cant remember the name but i will look in to this one thank u very much preciate a lot. i...
... From: Linda Meyer Sent: Wednesday, December 17, 2008 9:15 AM Subject: Pennies from God Pennies You always hear the usual stories of pennies on the...
Hello All, Thank you for this info leoenwilna. Even though it wasn't my question. This Dr. is the best. He was on Ophra. He is the one who removed the 200 lb. ...
Hi All While at an NFinc symposium in San Francisco, California in the USA a Doctor Hubert Weinberg put on an impressive presentation of a procedure called...
In response to this message. This is the docotor out of New York. I did post a message about him as well as another person in the past few weeks. This...
When I had my fibromas removed they were covered by my insurance. I believe in how the doctor codes it....I bet in New York they code it so insurance will...
Thank you so much for this information.....it really helps me to get them removed. Kind if makes me feel like I have some control over a disorder that none of...
Hello everyone, Hope you are all well. Hope everyone has a good time over christmas and new year and you all get what you have asked santa for. All the best...
Jenny (and all)I feel the same way. The reason I said I could not afford to see the doctor is because I am self employed and do not have health insurance. I...
Hi, My husband and I adopted our son from Guatemala last year he was 14 mos and when we brought him home, I noticed he had some "dark spots" on his legs. I...
hi I can not say much about how things would proceed in future...but i would suggest to consult a different doctor...that arrogant person is not worth ...
Hi How is your son's energy level does he sleep a lot, is there any bruising? I am basing these questions on an experience I had with My own son he was 7...
You do not say where you live. Go to www.ctf.org, which is the NF national website. It lists local NF clinics and NF doctors. Good luck and hope this post...
hi, First of all take 1 day at a time. 2nd NF is very wide spread everyone is different on what may happen, some only get signs spots and a few tumors, some,...
Genetic experts and specialists are trained to counsel NF patients by encouraging them NOT to reproduce. Some doctors and specialists appear to be unfeeling...
My fiance and I have been talking about having a baby. I have NF1 and know that my chances of passing it on to our child is 50%. We have been looking at...
Hi Justin  This is hard place to be in. I have NF1. My wife & I have a son "now 30". I passed it onto him. My Dad tried talking me into not having kids. He...
I am a female with NF and have had two children (now older) without NF. My father has the NF gene and had five children and only two of us inherited it. My NF...
... and ... time ... can ... of my ... the ... My name is Melissa. I also have NF1. For the longest time I have wanted to be a mom. I am 34 and I had been dead...
Hello all I am a 31 year old male, with NF, my dad also has NF, at the time when my parents had me, they didn't know he had NF. after having me and find out...
I am 36 and have NF1. I have had 4 wonderful children and only one of them has NF1. The thing is she has gone through more than i have ever. She has gone...
Thank you Nikki !!!!!! **************New year...new news. Be the first to know what is making headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026)...
I want to thank everyone for their responses. I appreciate the time and effort that went into responding...they were so detailed and helpful. I'm hoping I'll...
well i can tell u from my expariance i do have nf 2 and my first daughter has it is very mild just like me and my second daghter dosent have it with my first...
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