I can not nderstnd why some people are so ignorant. Excuse me if I seem to rant, but it's starting to get old. I work retail part time and this lady i as...
Welcome to the group. I saw your picture. You are very pretty. I hope you feel right at home here. Everyone is very sweet and supportive. Have a great...
welcome to the group this is a wonderful group im tessy single mom i have nf1 and also have 2 daughters 4 and 6 and some drs thing my j6 year old has it but...
i Zubair, About the army sitaution. Did they let you join? I was interested in joining the Ai froce but I am afraid they will not accept me b/c of my nf (they...
I am sorry to hear you are going through this. God Bless you. I know you will graduate and go on to be very succesful. Doctors can not predict what God has...
About your comment about having bumps removed. Is anyone aware or has anyone been to the plastic surgeon out of New York who uses a special technique to...
Hello group I live in the UK so i do not know if this is available elsewhere in the world or if it willbe the same type of surgery that you know about ?? but i...
Hello all, Â I have been in group for while but first time i have posted. I have NF1 and have for as long as can remember. I have been thinking of getting...
hi there, well first of all soory for the late reply...it was weekend and i was in my village and no internet access there.... well i applied to join acaedmy...
just keep up the work.... i was declared a hop less case and a person with a very dark future...some of the comments were really very insulting...but i still...
hi guys. just a ?. littlenloud - carolinacpnter - fire21_98 - bigred - mrsteve - tammy harris - and others of this time period in the area of 2006 are you...
Well im still about from that era and i'm the rest are to. The group has been in abit inactive for quite a while so it would be nice to get it up and going...
Hi All While at an NFinc symposium in San Francisco, California in the USA a Doctor Hubert Weinberg put on an impressive presentation of a procedure called...
steve, you had mentioned way back, way way back that you had the option of an opperation on your lower back. I just wanted to know what your decision was and...
Hi there Bill Yes i did have the option and even though i still suffer from the pains i decided NOT to have it in that the risk of what "could" go wrong to the...
Steve, You mentioned that you did not go through with the opperation. Were you ever told of any circumstances that may happen if you do not have the...
hi all, Just to add my experince the doctor i consulted told me that the the neurofibromas/bumps are harmless until you feel pain in them. And he told me that...
Hi All, I had asked this question previously as well but could not find a answer so just asking again , it is related to how much NF1 can one have? For example...
not sure ito have nf1 and im 48 im starting to get more bumps when i was youger i dint have very many i even went in the navy didnt know i had nf thought the...
I wish I knew. My Father had lots "several hundred". I have several hundred, from the top of my head to the souls of my feet. My son has as many as I did at...
wow, I didn't expect this muck of a responce. First I would like to say Hi to eveyone with a posting- Alan, Zubair and Terry. Sorry if I Missed someone....
 I was wondering if there was any Men here that also sffer from ED. Terry ... From: bill <sjb3328@...> Subject: [Neurofibromatosis] re: everyone To:...
It seems to me that as you age you get more and more bumps. I had very few bumps but as I have aged I have gotten more and more. Once I got into my thirties...
Yes, i think this is what happened to me as well. I can see a some bumps which were not there few years ago. And if bumps increase dose this mean other issues...
Hi Gail, yes, the same here. I'm going to say for me it was in my late 20's to early 30's when they started to multiply faster than I could count. Though I...
Zubair, This is a good question. but I don't think that it is linked to how many tumors you get or have, do to other complications getting worse. It has to do...
I have NF1 and have a B12 deficiency "pernicious anemia". I am taking B12 injections I don't think it helped allot for me but a B12 deficiency is dangerous...
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