i have nf 1 and have noticed that the numbness and loss of feeling is getting worse and the feeling is starting not to return...does anyone else have this...
I have it lots in my fingers if I spend lots of time on the comptuer. Other wise it doesn't happen unless I stand alot. I heard that MS runs in people that...
Hi I have numbness mainly in the 3 centre toes of my right foot, best way to describe it is as if I am wearing shoes that are too tight and my toes have been...
Hi, I am also having numbness in my right foot on the right side, i have had a CAT scan and a MRI and they found that there is a nuerofibroma there causing it....
Hi All, I am zubair and have NF1, it's quite severe as i have number of coffee marks (on right wrist and under left arm) and plenty of bumps (numbering in...
hi subair i like u name well i do have the same nf1 it was dignoze at age 6 and i do have learning desability and i have my masters in special education it...
hi tesy, destiny, andera merino thanks for the reply and a nice inspiring story...best of luck to you and your family members your children will require...
Hi Zubair, First of all there is no cure for NF, learning disabilities are very common with NF. I have then myself, you have 1 up on me I never went to...
hi jhon, glyn and all glyn you are absolutely write that we should remember that there are people who are worse then our selves. and i used to concider my nf1...
I have not heard that exercises makes tumors grow more, I just don't know. I have heard that a cholesterol called lovastatin might help a little with memory,...
hi jhon, thanks for the reply and yes it was good...lolz... well the excersaie thing was said by millitary doctors, actually my nf1 was diagnosed when i signed...
I think the key to correcting or perhaps curing this disease is to look into the endocrine system. An imbalance between the hormones secreted by the 'system'...
hi comdyne (i do not know exact name), nice reply and pretty much technical...i do not understand the technical terms but can understand that you are a doctor...
First, NF1 there is 1 to 3000/4000. NF2 is 1 to 40000 people. if 1 person has NF there is a 50/50 chance that the child will or will not have NF, if both...
hmmmm may be the chances of nf1 being transfered to children depends upon the severity...and i always pray that none of my children (if i have them ) have it...
Dont quote me on this and I dont know how true this is but i'm sure that they have found the faulty gene that causes NF (see email below) and also im not sure ...
http://www.genetics.com.au/pdf/factsheets/fs37.pdf Genetic testing for changes in the NF1 gene is not widely available and is currently expensive but can be...
I do not use my name on the internet. I am not a doctor but am an amateur researcher specializing in the use of moving energy in the correction of metabolic...
NF is not really a disease of the skin NF tumors grow off nerves, they can have long roots, so lets say you have a tumor on your elbow the nerve it could be...
well thanks again for the reply and far a amature researcher...this is a lot...frankly spekaing it seems purely professional thanks for the explanation...
I would like to add another personal opinion; I believe that sun exposure on a daily basis of about 1/2 hour may be beneficial in curtailing this condition....
for spelling of english, thanks to spell checker...other wise i am a worst speller and i live in Pakistan...a country in south asia and when i told the...
i am going to have to leave the group. A lot is going on right now and I just can't be as committed tothe group as I like to. I know I haven't posted much, but...
most of us just come and as we have time, sometimes I don't even check what has posted just pop in now and then, hope you don't leave the group by unjoining,...
i just joined the group so im just gonna tell about myself, im 19 and was dinosged with NF1 when i was 4month old and at age 4 i become deadly ill docters...
yes off course there is no need tp leave the group... one can carry on with reading threads... its really helpfull... so would suggest as not to leave...
welcome to the group, I know learning disablities all to well, I am 50 years old. I never had any children< I am married now for 6 years and a few months, my...
with all the due respect of group members....i do not mean to initiate a discussion or a thread based on hate... so is this a group for people with NF or a...
I don't think we should be talking politics here in this forum. Barack is a Christian. His father was of Muslim decent but his mother was not. His mother left...
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