Thankyou so much for your response.I heard if i get a plastic surgeon to do the job he will lave smaller scars.I am just curious, did you use a plastic...
Attn: man Reiklinghausen sufferers: Although I don't have this disease I have an interest in it because I read a book by a doctor who claimed to treat it...
omg i am interested who is this doctor can u give me his information i do have nf 1 and i suffer with on my face and my back and i constantly have to have them...
if is this true where and with which dr can i get this treat ment here in laredo not to many doctors knows about nf 1 or 2 but i do a little bet and i would...
Dr. Jules Samuels published his major work in 1947 titled 'Endogenous Endocinotherapy'. His belief was that a malfunction in the hormonal output of the...
this DR might have been able to learn alot more if he would have had a electron microscope back then. would his finding have changed any if he knew a...
Hi all!! I just went for my annual eye exam, and I was referred to an opthalmoligist (sp) for a full retnial exam. after seeing him, he told me that my right...
hi, I have a tumor in my right eye socket I am also missing the bone there, because of this my eye is in alot and up to the right also. I had a mri about a...
Hi everyone, Hope this is ok to post here... You can see a list of my groups on Grouply at the link below. Maybe you'll find some you want to join. tessy ...
Hi, My younger brother has NF. I am working with the Texas NF Foundation to raise awareness. The foundation has asked me to propose a photographic project. I'd...
hi, 1 thing is for teaches to understand the kids they teach who have NF might have learning disabilities, the kids that have it try and try and try their...
does the foundation have any MRI's that can show how Nf affects the brain. the area of the Brain that is call the Hippacampus is the area of learning and...
please put me on "no mail/Special notices" until further notice. With this Tropical Storm Fay headed my way, I may lose power and don't want my email to bounce...
i have nf 1 and have noticed that the numbness and loss of feeling is getting worse and the feeling is starting not to return...does anyone else have this...
I have it lots in my fingers if I spend lots of time on the comptuer. Other wise it doesn't happen unless I stand alot. I heard that MS runs in people that...
Hi I have numbness mainly in the 3 centre toes of my right foot, best way to describe it is as if I am wearing shoes that are too tight and my toes have been...
Hi, I am also having numbness in my right foot on the right side, i have had a CAT scan and a MRI and they found that there is a nuerofibroma there causing it....
Hi All, I am zubair and have NF1, it's quite severe as i have number of coffee marks (on right wrist and under left arm) and plenty of bumps (numbering in...
hi subair i like u name well i do have the same nf1 it was dignoze at age 6 and i do have learning desability and i have my masters in special education it...
hi tesy, destiny, andera merino thanks for the reply and a nice inspiring story...best of luck to you and your family members your children will require...
Hi Zubair, First of all there is no cure for NF, learning disabilities are very common with NF. I have then myself, you have 1 up on me I never went to...
hi jhon, glyn and all glyn you are absolutely write that we should remember that there are people who are worse then our selves. and i used to concider my nf1...
I have not heard that exercises makes tumors grow more, I just don't know. I have heard that a cholesterol called lovastatin might help a little with memory,...
hi jhon, thanks for the reply and yes it was good...lolz... well the excersaie thing was said by millitary doctors, actually my nf1 was diagnosed when i signed...
I think the key to correcting or perhaps curing this disease is to look into the endocrine system. An imbalance between the hormones secreted by the 'system'...
hi comdyne (i do not know exact name), nice reply and pretty much technical...i do not understand the technical terms but can understand that you are a doctor...
First, NF1 there is 1 to 3000/4000. NF2 is 1 to 40000 people. if 1 person has NF there is a 50/50 chance that the child will or will not have NF, if both...
hmmmm may be the chances of nf1 being transfered to children depends upon the severity...and i always pray that none of my children (if i have them ) have it...
Dont quote me on this and I dont know how true this is but i'm sure that they have found the faulty gene that causes NF (see email below) and also im not sure ...
http://www.genetics.com.au/pdf/factsheets/fs37.pdf Genetic testing for changes in the NF1 gene is not widely available and is currently expensive but can be...
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