Hi. I'm Rosie, I have a 10 year old daughter with nf1. She has started to get lot of pain in her legs and is needing an op soon. Were in the UK, but there does...
Thank you very much for everyone's responses. I truly appreciate it!. have a great weekend **************A Good Credit Score is 700 or Above. See yours in just...
i have nf myself no tattoos yet but i have friends with nf with lots of tattos some places wont do it  would say ask your docter but they will say not to...
Hello Everyone, My name is Kristy and I am new to your group.? I have neurofibromatosis.? My mom has it and my younger sister has it.? My older brother and his...
my questions is about anyone that is suffer hearing loss or has lost thier hearing, i think im starting to have severe ear problems can any one please explain...
I am from Traverse City, Michigan. I have been diagnosed with neurofibromatosis type 2 since I was 18. I am now 37. I have had many surgeries..  I am...
hi steve, im still new to the group so forgive if we all ready have one but i would love to have a live group chat,my share info we might have or to just talk....
hi steve im tessy i have nf 2 also sorry im not in u area i live south tx but we can still talk i know what is like i had it all over my face my hands and...
Hi my name is Steven Prebus and i looking for groups or  individuals with nf 2 in southeast  Michigan area, really want to met and talk with people who...
Survey: An inquiry leads us to investigate the complaints of those who suffer from NF. It's totally anonymous and the information will only be used to ask a ...
You're Invited! You're invited to join my network of friends. By joining BikerSingle, you can reconnect with old friends, meet new biker friends, start a blog,...
Hi, my name is Michelle and am 33 married to an amazing man named Rob we have 4 children. My 4 children as well as myself have NF1. I have been reading more...
Hi Below is a link to Dr. Hubert Weinberg results and other information regarding the procedure. I posted about him in an earlier post. Consider your company...
My fiance and I have been talking about having a baby. I have NF1 and know that my chances of passing it on to our child is 50%. We have been looking at...
Hi, My husband and I adopted our son from Guatemala last year he was 14 mos and when we brought him home, I noticed he had some "dark spots" on his legs. I...
Hello everyone, Hope you are all well. Hope everyone has a good time over christmas and new year and you all get what you have asked santa for. All the best...
... From: Linda Meyer Sent: Wednesday, December 17, 2008 9:15 AM Subject: Pennies from God Pennies You always hear the usual stories of pennies on the...
i have a 4 year old little girl that has nf1 and she just started having this eye blinking thing going on and i was just wanting to see if you guys think this...
A rough guess is about 7 years. (I have known). It may go back as far as 1990, without me completely understanding what I had. I had a car accident in Dec,...
Jenny, You are right, about the dural ectasia. This was also mentioned at one time or another to me. Everything you said on describing this is right on the...
I have had a brain MRI, it showed I have ( spelling lol ) per-rif-ated white matter in the hippacampus area on my brain which is the area learning and memory...
Hi All, I had asked this question previously as well but could not find a answer so just asking again , it is related to how much NF1 can one have? For example...
Steve, You mentioned that you did not go through with the opperation. Were you ever told of any circumstances that may happen if you do not have the...
Zubair, This is a good question. but I don't think that it is linked to how many tumors you get or have, do to other complications getting worse. It has to do...
Hi Gail, yes, the same here. I'm going to say for me it was in my late 20's to early 30's when they started to multiply faster than I could count. Though I...
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