Does anyone else have problems with excessive tiredness i'm trying to work out if it's conected to the NF or something else. I've had all the usuall blood...
... the ... Yes I suffer from the same, I can have a time where i will go to bed at about 9pm and not wake up till gone 10am and also a time where i wont goto...
I have been oeverly tired lately myself. Granted I do get up early but I crashed around 9 PM on the couch last night while watching TV and hubby woke me up to...
Hi Your sleep deprivation might be linked to stress, anxiety. Try to always sleep in a very cool room, do not eat meat for diner and do not take too much stuff...
People with NF1 tend to be self centered...... Speak for yourself and don't tar us all with the same brush while doing so. I am far from being self centered -...
My diet has hardly anything to do with it. I lost roughly 30-33 pounds and have kept it off (for the most part give or take a few pounds. I walk 2.5 miles a...
My daughter has been going through chemotherapy for a year for a Optic Glioma and as of right now the tumor is a bit smaller and swelling is down but it has...
Have the Dr.s Check Your Thyroid . It maybe under active I have a low active Thyroid, Can't realy say its NF related But I never have done any research. Id...
guys hello i havent posted this but i feel i need to they dr found a tumor in my neck between the 3rd and 4th vertebre in 2002 it never really gave me trouble...
Where do u live. I live in MA and can refer you to my Neurologist if you live near here. ... From: k s <sassy_me_1975@...> guys hello i havent posted...
Hello All I have problems with my spine, i have what's called scoliosis (if that is spelt correctly ?? in other words its a curvature of the back, which was...
Dear friends On September 21st. 2008 I will be participating in the Boston Marathon Jimmy Fund Walk. I am walking 13.1 miles in memory of my brother who had ...
Melissa, I really admire you as I have malked 3 1/2 marathons for NF and it is one of the most rewarding experiences that you can have. Did you know that...
Please take your Birthday off the Calendar!! Anone who subscribes to this thread gets it added to their calendar everyday because yoe have it on everyday>...
hi my name is tessy im new here im a divorce mom with 2 girls one is 6 and my baby is 4, my 6 year old and me we have neurofribromatosis and i had learn to...
Hello, My name is Troy. I have NF2. People look at me strangely because of my face also. I found out about my desease in 1988 when my left eye was hurting so...
hi troy im in the same shoes i found out when i was 9 years old more or less anyway I'm glad u email me so we can become friends, my face start to look this...
Hi, My name is Nikki and i have four children. Me and my 7yr old daughter have NF1. I have known since about 4yrs old and my daughter i have known since she...
I wish that this room would be like the old days.... people would sign in andjujst chat. sure helped when you were feeling down and did not want to upset...
I'm farily new here, but I would like that also. Terry nikkichats <no_reply@yahoogroups.com> wrote: I wish that this room would be like the old days.... people...
http://www.youtube.com/watch?v=YVELz8zbf2g Debra Duncan Show - "Reggie Bibbs & Neurofibromatosis" The Debra Duncan show was a local TV talk show on ABC-Channel...
Hi José, We just saw the show and liked it very much. Wilna, my wife, also has NF1 and all the sympthoms are very alike. She has about 500 growths only on her...
hello everyone i also have NF1 and all my back is full of those things and in my neck too i have some in my face i would like to ask if anyone knows how can i...
I go in about once a year to have fibromas removed by laser surgery. It is called co2 Laser. Have had some removed on the face this way and it was successful...
Sorry I haven't posted in a long time. I was out of work since December and have spent a LOT of time looking for a new job. I finally got one as a teacher aide...
Hi there, sorry for not posting on here for a while, but l have been heavily involved in several issues where l live. Back in May 2007 l was elected onto our...
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