Quoting "... ..." <luckyclovergal07@...>: dear sherrie my prary willl be with you always remember that god has you in his hand we was told that we had...
Sherrie, My prayers are with you...my daughter has NF and has been suffering from migraines, her doctor put her on Topomax, which is a seizure med, that works...
Note: forwarded message attached. Subject: This is an INCREDIBLE Site !!!! This is interesting! When you click on the web site link below, a world Map comes...
Note: forwarded message attached. Picture of Senator Barack Obama Failing to Salute the Flag While Others on a Platform, Including Senator Hillary Clinton, are...
Note: forwarded message attached. ........and boy, do I also! Subject: I agree with this one. I bought a bird feeder. I hung it on my back porch and filled it...
Note: forwarded message attached. You are in your car driving home. Thoughts wander to the game you want to see or the meal you want to eat, when suddenly a...
My daughter has NF1 and has an Optic Glioma that they are treating with Chemotherapy. She is only 7yrs old and is doing alright. She has lost a pretty descent...
i go see the neurologist Nov 13. Right now I am on Tylenol 3. My mom had shoulder surg recently and gave me the rest of her Darvacet. I will ask about Topamax....
Thanks for the update. I had a brother that lost his eye sight to a tumer on his opticnerve at the age of 6 in 1961. Terry nikole <eleteach03@...> wrote:...
I am no Obamah fan but lets not post anything we haven't verified. I looked for the real story and here is what I found, wathc the actual video of the...
i got this from work and thought I'd pass it on Consider sending a card to those who need cheering up. When you are making out your Christmas card list this...
Note: forwarded message attached. Note: forwarded message attached. Susy Nonnie to Pete and Abbie. Note: forwarded message attached. Ask a question on any...
Hello, Our agency is seeking a home for a little girl in Korea who most likely has NF. This little one was born in March of this year and more informati on...
Hi there! My name is Katlyn, I'm 27, a mom to a fabulous 14 mo. old little girl, and am the daughter of a wonderful 54 year-old woman of whom is newly...
Hi Katlyn I'm Terry here in the show me state. I'm 54 father, my dad & brother had NF 1, I as well as my 29 year old son has NF 1. We are here to support you...
Katlyn Barcroft <katlynandkyle@...> wrote: Hi there! My name is Katlyn, I'm 27, a mom to a fabulous 14 mo. old little girl, and am the daughter of a...
Note: forwarded message attached. Just a reminder Christmas will be here before you know it! ~You have just been hit with an e-mail snow ball!~ It's the start...
Hi all, My name is Tracey and I am a 31 mom to 3 children Kerry 13, Owen 3 and Megan 11 months. We live in Paisley, Scotland When my son was born we gradually...
hi tracy, welcome, i also have a 3 year old, but shes a a girl and your story sounds alot like are's i just wanted to say hi and welcome this group is vary ...
Hi Tracey I'm Terry in Boonville Mo USA. I also have NF 2. Like your son I learned to walk late "that is what my Mom said" My body wouldnt hold down food for...
Note: forwarded message attached. Note: forwarded message attached. Can you answer this riddle? Here is a pretty neat little thing from Paul Harvey. See if you...
Note: forwarded message attached. Subject: Fw: Alabama Judge Subject: Alabama Judge Some of you may be wondering what Judge Roy Moore has been doing since he...
if you were to go outside right now, and run to McDonalds drive thru, what clothes would you have to wear to go outside right now? What is the current temp? ...
Its cold and snowy here in Big Rapids, Michigan and i would wear the same just to go out to McDonalds drive thru. lol. It is like only 30 some degrees here....
I would have tobundle up & wear clets on my boots tokeep from falling on the ice. Today's highis only going to be inthe 20's. Terry Sherrie in Florida...
hi everyone at work we have a big christmas card that people sign instead of buying their own cards. what they would spent they donte to Neurofibromatosis...
Hi all! As I explained in my intro., my mom was recently diagnosed with NF2. My doctor now wants to test me for NF so, I have the 2-3 hour MRI scheduled, the...
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