Hi my name is Terry I'm 54 years old married with 2 aduilt children. Christina is 30, she was from my wife's first marrage & I adoptd her. Paul will be 29...
I HAVE NEVER HAD THE CAFE SPOTS REMOVED JUST SOME OF THE BUMPS (LYNCH NODGLES) (SP) I NEVER REALLY CARED ABOUT THE CAFE SPOTS. ... Pinpoint customers who are...
Did you have your bumps lasered or cut out. I had some in my scalp cut out. I was wanting to have some removed from my face neck arms & hands. But the Doctor...
I Have had a total of 4 cut out none of them were lazed. One on each of my shoulders, and two on my right arm. They were pretty ugly and looked like big...
to me my cafe au lait spots are just big freckles. Now I have a huge sub cutaneous cyst on my back that I am having removed. Will send in before and after...
There is a big difference between cafe au lait spots and the neurofibroma tumors. The spots are be reduced in color but never totally "removed". The tumors...
Why transfer the whole group? You can open an NF group there and just leave this one open. There are many people who have been coming here for years and some...
Hello everyone. I will not be transferring this site or opening an account with facebook or similar social networking website. I find it is quite easy to visit...
In case anyone is wondering, there are several NF groups on Myspace that I belong to. ... From: brian_robert_williamson <no_reply@yahoogroups.com> Hello...
yes Gail your right I get so busy these day's, I just pop in now and then, plus I have never used myspace and never plan too. if others like it thats ok it's...
Hello Friends, Since we all have been touched by NF in one way or another, I would like to ask that you support me in my efforts to raise funds for NF ...
Quoting "... ..." <luckyclovergal07@...>: dear sherrie my prary willl be with you always remember that god has you in his hand we was told that we had...
Sherrie, My prayers are with you...my daughter has NF and has been suffering from migraines, her doctor put her on Topomax, which is a seizure med, that works...
Note: forwarded message attached. Subject: This is an INCREDIBLE Site !!!! This is interesting! When you click on the web site link below, a world Map comes...
Note: forwarded message attached. Picture of Senator Barack Obama Failing to Salute the Flag While Others on a Platform, Including Senator Hillary Clinton, are...
Note: forwarded message attached. ........and boy, do I also! Subject: I agree with this one. I bought a bird feeder. I hung it on my back porch and filled it...
Note: forwarded message attached. You are in your car driving home. Thoughts wander to the game you want to see or the meal you want to eat, when suddenly a...
My daughter has NF1 and has an Optic Glioma that they are treating with Chemotherapy. She is only 7yrs old and is doing alright. She has lost a pretty descent...
i go see the neurologist Nov 13. Right now I am on Tylenol 3. My mom had shoulder surg recently and gave me the rest of her Darvacet. I will ask about Topamax....
Thanks for the update. I had a brother that lost his eye sight to a tumer on his opticnerve at the age of 6 in 1961. Terry nikole <eleteach03@...> wrote:...
I am no Obamah fan but lets not post anything we haven't verified. I looked for the real story and here is what I found, wathc the actual video of the...
i got this from work and thought I'd pass it on Consider sending a card to those who need cheering up. When you are making out your Christmas card list this...
Note: forwarded message attached. Note: forwarded message attached. Susy Nonnie to Pete and Abbie. Note: forwarded message attached. Ask a question on any...
Hello, Our agency is seeking a home for a little girl in Korea who most likely has NF. This little one was born in March of this year and more informati on...
Hi there! My name is Katlyn, I'm 27, a mom to a fabulous 14 mo. old little girl, and am the daughter of a wonderful 54 year-old woman of whom is newly...
Hi Katlyn I'm Terry here in the show me state. I'm 54 father, my dad & brother had NF 1, I as well as my 29 year old son has NF 1. We are here to support you...
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