I guess a lot of us get so busy with family work etc and just check in once in a while to see if anything is going on. this last week is my first work week I...
Just an update on Tia, she is still going through Chemotherapy and is now going to Shriner's Hospital for her ankles and legs. I don't know when we are going...
Is it possible to have both NF1 and Schwannomatosis? I have ha NF1 since I was born. I have the tumors, the spots...the height probs...the whole package. But...
I to have NG1 and have been having a lot of back pain and problems with my legs going numb. I am waiting to here from the dr about my MRI. I wish I had some...
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Hello everyone, l hope you are all well and having a good time. Since changing this group from a public to a private group whereby you need me to approve your...
Hello everyone I have NF1 and have been "in remission" since 1987. Well I have been having migraine like headaches for over 2 weeks. Regular stuff like Tylenol...
I will definitely pray for you. Hope everything works out. Nikki Benson Sherrie in Florida <Sherriebaby65@...> wrote: Hello everyone I have NF1 and have...
Sherrie, My heart goes out to you! I also suffer from migraines, tho I do not have NF, my daughter does tho, and she has terrible migraines...they prescribed...
I will keep you in my prayers. Please let us know when you get a chance. I will be thinking of you. Its hard when things that may seem "not too unordinary" in...
wish you all the luck in the world! i shall pray =) --Rebecca ... ____________________________________________________________________________________ Be a...
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MRI was rescheduled to Saturday afternoon. They had some maintenance on the maget part of the MRI machine to do Wednesday. I just wish these headaches would go...
Here is your AWWWWW for the day. Among the things you can give and still keep are your word, a smile, and a grateful heart !!!! ... See what's new at AOL.com...
Hi my name is Terry I'm 54 years old married with 2 aduilt children. Christina is 30, she was from my wife's first marrage & I adoptd her. Paul will be 29...
I HAVE NEVER HAD THE CAFE SPOTS REMOVED JUST SOME OF THE BUMPS (LYNCH NODGLES) (SP) I NEVER REALLY CARED ABOUT THE CAFE SPOTS. ... Pinpoint customers who are...
Did you have your bumps lasered or cut out. I had some in my scalp cut out. I was wanting to have some removed from my face neck arms & hands. But the Doctor...
I Have had a total of 4 cut out none of them were lazed. One on each of my shoulders, and two on my right arm. They were pretty ugly and looked like big...
to me my cafe au lait spots are just big freckles. Now I have a huge sub cutaneous cyst on my back that I am having removed. Will send in before and after...
There is a big difference between cafe au lait spots and the neurofibroma tumors. The spots are be reduced in color but never totally "removed". The tumors...
Why transfer the whole group? You can open an NF group there and just leave this one open. There are many people who have been coming here for years and some...
Hello everyone. I will not be transferring this site or opening an account with facebook or similar social networking website. I find it is quite easy to visit...
In case anyone is wondering, there are several NF groups on Myspace that I belong to. ... From: brian_robert_williamson <no_reply@yahoogroups.com> Hello...
yes Gail your right I get so busy these day's, I just pop in now and then, plus I have never used myspace and never plan too. if others like it thats ok it's...
Hello Friends, Since we all have been touched by NF in one way or another, I would like to ask that you support me in my efforts to raise funds for NF ...
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