taking Gabapentin, seems to help some I take 300mg 3 times a day I still get some shooting pains but not as many but after 6 hrs start getting them more so...
Hi It said to click on this link so I can e mail other members Well here I am if anyone wants to chat e mail me!!! I'd love to hear from other NF1 sufferers ...
Good Morning, So you are new to this site? Welcome! I do not get to write that much, it seems all I do is work anymore. I too have NF, have struggled most of...
... Hi Tammy, Werewolf and others, i tried to write down my experiences in a poem... I'm laying down on the lawn, in the recreation-resort. I just layed...
NF - Interview! To explain other people what NF means, we introduce an interview. We would like to invite you to join this. It handles also about the...
Everyone has to deal with something else. I'm laying down on the lawn, in the recreation-resort. I just layed down,... In this great source. Two teens, both...
A bird's song The sun is hot, the sky is clear. There are no clouds and I am here. I hear the birds singing a song. It sounds so nice ..., and it takes long. ...
Please send Sylvana a nice card! Sylvana is a 9 - year old girl, suffering from leukaemia. Now she is in hospital, having a lot of pain. She will be...
Pam, This is my home email I am sending from Of all the friends I've ever met, You're the one I won't forget. And if I die Before you do I'll go to heaven And...
I guess a lot of us get so busy with family work etc and just check in once in a while to see if anything is going on. this last week is my first work week I...
Just an update on Tia, she is still going through Chemotherapy and is now going to Shriner's Hospital for her ankles and legs. I don't know when we are going...
Is it possible to have both NF1 and Schwannomatosis? I have ha NF1 since I was born. I have the tumors, the spots...the height probs...the whole package. But...
I to have NG1 and have been having a lot of back pain and problems with my legs going numb. I am waiting to here from the dr about my MRI. I wish I had some...
This website is for people living with herpes, hpv or other stds. Many lonely girls join this site and seek hot guys. Are you alone, too? You can join this...
Hello everyone, l hope you are all well and having a good time. Since changing this group from a public to a private group whereby you need me to approve your...
Hello everyone I have NF1 and have been "in remission" since 1987. Well I have been having migraine like headaches for over 2 weeks. Regular stuff like Tylenol...
I will definitely pray for you. Hope everything works out. Nikki Benson Sherrie in Florida <Sherriebaby65@...> wrote: Hello everyone I have NF1 and have...
Sherrie, My heart goes out to you! I also suffer from migraines, tho I do not have NF, my daughter does tho, and she has terrible migraines...they prescribed...
I will keep you in my prayers. Please let us know when you get a chance. I will be thinking of you. Its hard when things that may seem "not too unordinary" in...
wish you all the luck in the world! i shall pray =) --Rebecca ... ____________________________________________________________________________________ Be a...
we also will be praying...... ... ____________________________________________________________________________________ Check out the hottest 2008 models today...
... sherrie i will pray for you ... ____________________________________________________________________________________ Shape Yahoo! in your own image. Join...
MRI was rescheduled to Saturday afternoon. They had some maintenance on the maget part of the MRI machine to do Wednesday. I just wish these headaches would go...
Here is your AWWWWW for the day. Among the things you can give and still keep are your word, a smile, and a grateful heart !!!! ... See what's new at AOL.com...
Hi my name is Terry I'm 54 years old married with 2 aduilt children. Christina is 30, she was from my wife's first marrage & I adoptd her. Paul will be 29...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
