I do as well. I have had several surgerys to remove them and part of my spine is fused together because it was so weak, i sure I will have to have another...
well the EMG cost $1575 for a 10 min. test showed nothing !!!!!!!!!!! I did not need a 8 year M.S. degree to tell me it's just the neroens in my brain shorting...
I just wanted to let everyone know how Tiarra is doing right now. We went to Chemotherapy on Friday and her counts were too low to get her one chemotherapy...
we will be praying for her. Marty ... ____________________________________________________________________________________ Looking for a deal? Find great...
you have had a miscarriage. I am experiencing light head, dizzy and nausea. My period was due wednesday and Mon and Tues was very light pink spotty and you...
He said No Way on surgery I am missing the bone behind my eye and the eye sits on the brain and carotid artery, he said no DR unless it was life or dead would...
hi just read your letter wad was wondering about these pains in your hands if it feels like a electrical shock but lasts a lot longer and just keeps starting...
Hi Randy yes I get those too, most of the time it feels like someone jams a needle in my hands ( fingers )some a lot stronger yes they start and stop....
hi randy i take 3600mgs of gabapentin it helps with the pins and needel feelings John <bombardj1@...> wrote: Hi Randy yes I get those too, most of the...
John <bombardj1@...> wrote: Alan I checked your profile your are a Vet how did you get in with NF ? you most have had no sign of it to the DR's Yahoo!...
In 1975 when I tried to enter the Military, I couldnt because of NF. I do know of Men who have NF who where in Viet-Nam that had NF. On Man I met was in and...
Hi- A very special little boy in Korea is greatly in need of a family of his own. This little guy was posted once before and we thought we had found his ...
I will be seeing my Neuro DR Tues morning I want to ask him about this drug I think my Insurance will pay for it, I checked and they say 600m mgs 2 tabs 3...
i started at 600mg pr day i also 40mg of hydrocodone/4pain /25mg of triazolam 4 sleep/100mg of amitripyline/150mg sulindac/40mg citalopram 4 mood this is all...
newyorkwerewolf@... wrote: Kim I Tried to enlist in the Marines, once they heard my medical condition (98% blindness in 1 eye) i am considered 4F. gm...
The Neuro Dr is trying 300 mg 3 times aday for a month, I talked him into 600mg 3 times a day for 3 months, but if the 300mg work I can split the talbes in...
We are International! A new MSN - group has started! http://groups.msn.com/NFWorld-Wide For national and international contacts between people with NF With...
taking Gabapentin, seems to help some I take 300mg 3 times a day I still get some shooting pains but not as many but after 6 hrs start getting them more so...
Hi It said to click on this link so I can e mail other members Well here I am if anyone wants to chat e mail me!!! I'd love to hear from other NF1 sufferers ...
Good Morning, So you are new to this site? Welcome! I do not get to write that much, it seems all I do is work anymore. I too have NF, have struggled most of...
... Hi Tammy, Werewolf and others, i tried to write down my experiences in a poem... I'm laying down on the lawn, in the recreation-resort. I just layed...
NF - Interview! To explain other people what NF means, we introduce an interview. We would like to invite you to join this. It handles also about the...
Everyone has to deal with something else. I'm laying down on the lawn, in the recreation-resort. I just layed down,... In this great source. Two teens, both...
A bird's song The sun is hot, the sky is clear. There are no clouds and I am here. I hear the birds singing a song. It sounds so nice ..., and it takes long. ...
Please send Sylvana a nice card! Sylvana is a 9 - year old girl, suffering from leukaemia. Now she is in hospital, having a lot of pain. She will be...
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