Had 3 MRI's today, I will have a EMG on May 29TH then is the Dr. again on June 26TH to have the follow up. Then we go from there. 7 weeks to see the DR is a...
Hello everyone On Thursday May 3 2007 - l stood as a candidate in the town council elections and won a seat. The town l live in has a population of around 15...
CONGRATS!!! You are officially a city council member then?! brian_robert_williamson <no_reply@yahoogroups.com> wrote: Hello everyone On Thursday May...
hi melanie-i'm new here as of yesterday-my nephew has nf-2 and i'm hoping for some advice?not from web sites and a medical stand point-( we've done all of...
Hi Kim and Melanie, we did have some health - problems, so we were having a hard time with ourselves, sorry fot that. Normally we DO reply if we know...
thank you for your reply-kim leoenwilna <leoenwilna@...> wrote: Hi Kim and Melanie, we did have some health - problems, so we were having a hard time...
I have made this club 'by approval only' that way l aiom to cut down on the amount of spam that had started to get out of control, I have also started...
Brian Please do not delte me. I would like to remain a member of this group. Thank you Melissa ... From: brian_robert_williamson <no_reply@yahoogroups.com> I...
Hello Melissa, l will not delete you or other members who are active. I am only deleting members whose yahoo id no longer seem active or whose accounts have...
all righty that great to hear that for me we need more like you a lot of time i wish that we will have some one on the town or even state council that nkow...
Hello, because of NF awareness - month May, we contacted press in Holland. Now national tv is very interested taping an item about youth and NF in Holland, we...
Hi All, My Neuro DR. found something on my MRI, I know about the one on my right eye. MRI showed something in the brain, they could not go into it. The person...
John I am sorry to hear, but let's just hope that it is nothing,, look i work in a law office, it could be human error, could be a smudge on the film. Just...
Tiarra, has NF1, and has been undergoing chemotherapy for an Optic Glioma behind her right eye. When were at the eye doctors just two weeks ago we found out...
Melaine Its a hobsons choice i feel with NF when considering surgary as we know that the whole lump cannot be removerd and that they will grow back and we have...
Hi All, I don't think DR's know what they are doing most of the time. The tumor they have been talking about is the one that is in my right eye socket, so...
Hi, I have written only once before. Does anyone else have a tumor (schwannoma or neurofibroma) inside their spine, either next to or within the spinal ...
I have to go to the genetic dr in a month to see if i have one. They are saying my spinal canal is widening and i have to go and see the dr to find out what is...
I agree I have the hardest time finding a Dr even the specialist. I am always getting referred to another Dr. It is very time consuming and hard to cope with,...
I do as well. I have had several surgerys to remove them and part of my spine is fused together because it was so weak, i sure I will have to have another...
well the EMG cost $1575 for a 10 min. test showed nothing !!!!!!!!!!! I did not need a 8 year M.S. degree to tell me it's just the neroens in my brain shorting...
I just wanted to let everyone know how Tiarra is doing right now. We went to Chemotherapy on Friday and her counts were too low to get her one chemotherapy...
we will be praying for her. Marty ... ____________________________________________________________________________________ Looking for a deal? Find great...
you have had a miscarriage. I am experiencing light head, dizzy and nausea. My period was due wednesday and Mon and Tues was very light pink spotty and you...
He said No Way on surgery I am missing the bone behind my eye and the eye sits on the brain and carotid artery, he said no DR unless it was life or dead would...
hi just read your letter wad was wondering about these pains in your hands if it feels like a electrical shock but lasts a lot longer and just keeps starting...
Hi Randy yes I get those too, most of the time it feels like someone jams a needle in my hands ( fingers )some a lot stronger yes they start and stop....
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