Well, Tiarra is doing ok. We just noticed that her hair is now thinning and falling out. She is really not coping well with it. She has a lot of worries right...
i have NF and so do all my kids. My two sons also have Aspergers syndrome. Do any of you have kids with both NF1 and AS? Or yourself maybe?? just curious. ...
My 22 month old just had his routine yearly MRI/Ultrasound and EEG's. Well, they found an optic glioma on his right optical nerve :( Do any of you have one of...
Hi Jen I have Optic Giloma Mine are on the Iris of my eye No internal as far as I Know I had MRI of head a few years ago and nothing was there ......Ok...
Dear Jen Yes, I have an optic Glimoa on the bridge of the optic ciasam, which entwined the optic nerve. I am a 30 year old male, when i was 3, they tried to...
My daughter and I have NF1 and in January of this year I found out that my daughter has an Optic Glioma on her right optical nerve. We went through an MRI and...
I have four children, I have NF1, my oldest daughter is classified as Emotionally & Socially Impaired and has ADHD, my oldest son is Autistic and ADHD, my...
My youngest son has the worst of behavior problems related to the aspergers. He also has the worst manifestations of NF. He had a very large plexiform...
I have Autism Spectrum Disorder to go with my NF. It's not that unusual to have some sort of social learning disorder associated with NF - was a bit of pain...
they said that i am slightly or in the md's words suffer from mild mental retardation, it is a little hard for me to pick some things up (mentally not with my...
Mine is not that problem - I've IQ tested above 140 - which makes it even harder for people to accept I have the learning disorder I do have - they can't...
... unusual to ... a bit of ... the ... very ... again at ... 40yahoogroups.com>, ... classified ... Glioma, ... 40yahoogroups.com>> ... yourself ... My son...
sjmoffat1973 <sjmoffat1973@...> wrote: --- In neurofibromatosis2@yahoogroups.com, "Lizzi B" ... unusual to ... a bit of ... the ... very ... again at ...
i think the time has come to re name this group or make it private so non of this sexual spam junk comes through our group. I realize I haven't been around...
I'm all for it. How do we go about doing this? ... From: Sherrie in Florida <Sherriebaby65@...> i think the time has come to re name this group or make...
Hi Melissa and Sherrie, I agree!! Ban such people! Wilna en Leo, Arnhem, Holland. ... so non of this sexual spam junk comes through our group. I realize I ...
Hello everyone, l hope you are all well. I am extremely sorry for the all the spam and the members who are joining purely to put this spam on. As soon as l...
i think since Brian is the owner he has to set it that way. Notr sure if he appointed a moderator melissa_b_murphy@... wrote: I'm all for it. How do...
Tiarra is in the hospital right now going on our fourth day. Her chemotherapy and other meds and a virus took a toll on her liver causing her to see things...
Helo Friends, You can have the group set up for invite only or Preapproved membership . I have joined a few groups that you need approval first and it...
Thank you Brian!! I myself get discouraged and have contemplated many times taking this group off of my list.. but i hesitate to do so because of the...
Just one question though about joining how does this invitation stuff work as i dont know ? and how do the genuine people get the invite in the first place and...
Hello, hope everyone is having a great weekend. From today (Sunday) this club is RESTRICTED to new members. This means if anyone wants to join the group they...
ok lets hope the spammers get the hint or they give false info to you to get approval. :) I know I haven't been very active, lots of personal issues with my...
Thank you I hope this works I do not write very often myself but I like to keep in touch. It is very comforting to know that I am not the only one out there...
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