Hello everyone, l hope everyone is well and having a good 2007. Just been deleting messages not relating to neurofibromatosis and banning members who have been...
Hello fellow group members! I am 23 years old and have NF1. I have many questions about this disease. I was formely diagnosed over two years ago, but i have...
You asked... " 3. if one BIG purple one hurts is it time to go to the dr? " The answer to that is YES. Go see a doctor, ASAP. Ones that cause pain should be...
Hello Friend Just woundering where do you live? I can give you some sugestions if you are near the W Pa area.I have Had a plexiform on my right arm for as...
Hi All Just remember after @ it does not post our addies use AT then the full address will post then just replace the AT with @ when you write each other. John...
I am a single mom of four. Myself and my six year old daughter have NF-1. I have had several fibromas removed. My daughter, we just found out has swelling...
A few years ago there was a pediatric doctor in KC that specialized in NF. He was also very interested in NF in families, so I am guessing he takes adults too....
i use this link at work to locate doctors, there is an area that you can put in your city, state and zip, and type of md you want...it will give contact info,...
Ty very much- In neurofibromatosis2@yahoogroups.com, ... you can put ... contact ... don't know ... assn.org/aps/amahg.htm) ... info from ... Ethics_ ... ...
I, too, am looking for a doctor in my area. I live in Greeley about 60 miles north of Denver so I am willing to go to Denver for help. I suffer from massive...
Hi Terry Here is a Link to Drs in Denver Colo. http://www.ctf.org/index.php?option=com_content&task=view&id=52&Itemid= You can Also go to www.ctf.org thats a...
I'm actually about an hour from Kansas City. My son has NF and we see Dr. D at Childrens Mercy South in the Neurology department. He's a neurologist and...
Hi everyone.... I am new to this group and have a few questions. I had a neurofibroma removed from the hard palate in my mouth. My oral surgeon told me the...
Ty you. I tried contacting him, and his nurses or the lady who answered said he does not see adult pactients. This is a childs hospital and hung up on me.... ...
Welcome to Our Family...FirstI would do a little research. There are 3 things that are associated with NF 6 Cafe-Au-la spots 3/4 " or bigger Nuromas ..aka...
Hello 2 U all i would like to start out with that i have NF2 and DJD. Now that i'm getting older i have some health qustions. So i'm trying to find my birth...
don't know if you know your folks names, or where they come from.........you can try zabasearch.com it is a free site, gives names, addresses in some cases...
My six year old daughter is definitely going to have to go in for Chemotherapy.(she has an optic glioma in her right eye.) The problem is in both eyes and not...
Hi Nikole I too have an optic glioma, mine is on the bridge of the optic chiasm entwined with the optic nerve, i have 98% vision loss to the Rt. eye, 2% loss...
Nikole - I can't begin to imagine what you must be going through. My thoughts and prayers to you, your daughter, and your family. Try to stay strong. Tracy...
Hello everyone, hope everyone is well and having a good 2007, my apologises for the amount of spam that has been coming on here lately. I have been deleting...
Thank you ... From: brian_robert_williamson <no_reply@yahoogroups.com> Hello everyone, hope everyone is well and having a good 2007, my apologises for the...
My mom has nf, but my dad doesn't. I've been keeping an eye on my overall health for early detection just in case I'd have it. A week ago, I've developed a...
WHY DO WE KEEP GETTING ALL THIS SPAM??? HOW DO WE GET RID OF IT? I JUST WANT TO TALK TO PEOPLE WITH NF LIKE ME! ... Get your own web address. Have a HUGE year...
I don't post very often but I read everything. I think we should just ignore the spamers...........they probably get off on us getting upset. It 's been going...
Most email systems (AOL, Yahoo, MSN, etc) have either Spam control or Block mail, i tried spam control on aol, no luck, but if you open the email and right...
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