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neurofibromatosis2 · A place for people with Nf to get to know others
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Messages 5805 - 5847 of 6797   Oldest  |  < Older  |  Newer >  |  Newest
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5805
Hi Jim, really can't say what my favorite movie is I've seen so many. I will think about it though. Come on people, there has to be others out there that like...
bill
sjb3328
Offline Send Email
Nov 1, 2006
9:40 pm
5806
hi, haven't seen you guys for ages, miss you so much. I am back. Recently I created a club for friends, hope you can join us. Just regieter and tell me your...
lilyyu123
Offline Send Email
Nov 2, 2006
2:58 am
5807
Some of my fave horror movies are: Children of the Corn Part 1 All the Friday the 13 All the Nightmare on Elm Streets Excsorsist 1 The ORIGINAL Tales from the...
Sherrie in Florida
sherriebaby65
Offline Send Email
Nov 2, 2006
2:46 pm
5808
Bill i was 7 or 8 when i stopped, no, you are not a bad person, where i live these kids who are 16+ are out no costumes. there was a group of kids 5 girls...
newyorkwerewolf@...
ny_werewolf
Offline Send Email
Nov 3, 2006
2:36 pm
5819
guess the spammers have nothing better to do that to post trash in clubs...
John
bombardj1
Offline Send Email
Nov 4, 2006
5:46 am
5820
i know that is sad. Is there an assistant owner or moderator that can block that kind of stuff? Does any one here have any artifical limbs that are being...
Sherrie in Florida
sherriebaby65
Offline Send Email
Nov 4, 2006
2:47 pm
5821
I asked if he is still around, I told him I would take it over if he did not want it anymore, we will see if his email still works, I think I would start by...
John
bombardj1
Offline Send Email
Nov 6, 2006
12:54 am
5822
great idea John! I hope you hear from the owner.. let us all know if you do.. Tara John <bombardj1@...> wrote: I asked if he is still around, I told...
Tara Hendrickson
trobe09
Offline Send Email
Nov 6, 2006
4:16 am
5825
Last I remember, Brian was hardly able to be on due to his busy schedule. I am not sure if he is still the moderator. I do remember a few months ago he did...
melissa_b_murphy@...
bigred410
Offline Send Email
Nov 6, 2006
1:28 pm
5826
i do. I am under sherriebaby65 I think or paulswife2004 let me go to it and I will let you know melissa_b_murphy@... wrote: Last I remember, Brian was...
Sherrie in Florida
sherriebaby65
Offline Send Email
Nov 6, 2006
2:03 pm
5827
sounds like a good idea you have. I'll help ya if you want Sherrie John <bombardj1@...> wrote: I asked if he is still around, I told him I would take it...
Sherrie in Florida
sherriebaby65
Offline Send Email
Nov 6, 2006
2:04 pm
5828
I looked up both names and it couldn't find it. If you want, add me. I am www.myspace.com/jangel525 Thanks Melissa ... From: Sherrie in Florida...
melissa_b_murphy@...
bigred410
Offline Send Email
Nov 6, 2006
2:37 pm
5829
Hi there its not important to know how other family members have been affected by NF because it makes no difference to how your daughter will be affected...
lilliethepink1968
lilliethepin...
Offline
Nov 6, 2006
3:02 pm
5830
Hello everyone, hope you are all well. Sorry for not been around much but l have in a relationship which has just ended so will be online a lot more from now...
brian_robert_williamson
brian_robert...
Offline
Nov 6, 2006
3:05 pm
5831
Okay I will reply.. It doesn't seem like to many people reply here.. I have two daughters ages 6 and 3.. we went around to the houses of people we knew then...
Tara Hendrickson
trobe09
Offline Send Email
Nov 6, 2006
3:08 pm
5832
Hi My grandaughter who I am raising has NF1 she is only 7 years old. Her biological father and his family have it as well. They dont want any ...
loraine perreault
lorainep2004
Offline Send Email
Nov 6, 2006
3:09 pm
5833
thank you!! I think the scariest part of NF is the unknown.. lilliethepink1968 <no_reply@yahoogroups.com> wrote: Hi there its not important to know...
Tara Hendrickson
trobe09
Offline Send Email
Nov 6, 2006
3:43 pm
5834
I would agree with that 100%. NF is like a roulett wheel you never no when or where it will stop. ... there its not important to know how other family members...
lilliethepink1968
lilliethepin...
Offline
Nov 6, 2006
5:55 pm
5835
Boy if that doesn't say it all. lilliethepink1968 <no_reply@yahoogroups.com> wrote: I would agree with that 100%. NF is like a roulett wheel you never...
lori mccarthy
kallmetigger
Offline Send Email
Nov 7, 2006
2:34 am
5836
Hi Tara I read your a few of your posts and I suppose you are right that some people talk about other things than just NF. I have been a memeber of this group...
sparkiesean
Offline Send Email
Nov 8, 2006
9:31 am
5838
my daughter goes into hospital on 7th december to have a plexiform tumor removed. she is 8 y old...
lilliethepink1968
lilliethepin...
Offline
Nov 9, 2006
11:30 pm
5839
An NF Topic my daughter goes into hospital on 7th december to have a plexiform tumor removed. she is 8 y old ... <trobe09@...> wrote: A ... here.. I have two...
lilliethepink1968
lilliethepin...
Offline
Nov 9, 2006
11:31 pm
5840
what is the location of the plexiform.. I am not to familiar with this..I wish you the best! We will keep her in our prayers.. lilliethepink1968...
Tara Hendrickson
trobe09
Offline Send Email
Nov 10, 2006
3:03 am
5841
What is a plexiform tumor? And how long has she had it? My husband and his family have NF, most of them with tumors all over. I have a 21 year old daughter who...
Donna Thrasher
donna19482003
Online Now Send Email
Nov 10, 2006
4:27 am
5842
Donna how many children do you have? Donna Thrasher <donnadeejaytee@...> wrote: What is a plexiform tumor? And how long has she had it? My...
Tara Hendrickson
trobe09
Offline Send Email
Nov 10, 2006
4:59 am
5843
Where is her plexiform? Mine is on the left side of my head. I can send you a link where she can see pictures of my changes before and after a couple of...
Lizzi B
lizzibordon
Offline Send Email
Nov 10, 2006
3:44 pm
5844
what is a plexiform? I may have them and not know what they are called. I have multiple subcutaneous cysts (they look like huge mosquito bites) Sherrie Lizzi B...
Sherrie in Florida
sherriebaby65
Offline Send Email
Nov 10, 2006
5:02 pm
5845
Plexiform are benign tumors that grow along the nerves but is much larger in size that a fibroma which grow on the skin ... called. I have multiple...
lilliethepink1968
lilliethepin...
Offline
Nov 10, 2006
6:29 pm
5846
Only the one daughter, and she was a late surprise for hubby and me. I know God had a plan when he gave her to us. Hopefully she will never get NF, but I guess...
Donna Thrasher
donna19482003
Online Now Send Email
Nov 10, 2006
9:18 pm
5847
Above right eye follow links to hannah on http://uk.geocities.com/elizabeth.tucker@.../index.html ... can send ... after a ... plexiform ... sweaty...
lilliethepink1968
lilliethepin...
Offline
Nov 10, 2006
10:55 pm
Messages 5805 - 5847 of 6797   Oldest  |  < Older  |  Newer >  |  Newest
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