I just posted an update on Sarah. If you have registered (free on time) with her site, you'll get the invitation to view it. If not, go to www.carepages.com...
This is for reaching people world wide so every one will know the Truth about Canada! Read how the RCMP, Boys In Blue, Lawyers, Prosecutors, Judges etc., made...
Had to do a mass delete as my computer was down since Thursday and didn't get a chance to come back online til now and it seems to be working. Hope I didn't...
My granddaughter is 10 and has NF1, I think it is 1. Has had a surgery to take a tumor out of her cheek that is growing back. Anyway, question is: does this...
On Mon, 09 Oct 2006 13:47:48 -0000 "cindystyer" wrote: IT DOSE ALL ON HOW SHE IS FACSING HER NF I KNOW SHE CAN DO ANYTHING SHE WANT TO THE ONLY WAY IT CAN...
Hi there Chiildren with NF1 can have learning difficulties which can cover a wide spectrum of problems eg problems with spelling, maths, english etc but also...
No matter what is our problem in life we need to let it go because even all of us one day we will have to go....No matter what!!!!!! ... didn't get a chance to...
Thank you for your response. She does really well in school Almost all A's. Just this, if we don't give her what she wants, she runs to Mom to get it. And I...
it is cold here. At 8:30 this morning it was 49 outside!!! Supposed to be near 69 for high!! THIS IS FL!!! I am cold. All windows are shut, a/c is off just a...
My name is Tara and I live in Nevada. I have two girls 6 and 3.. I believe my 3 year old and husband and his biological father have NF1. To this date none of...
In uk we do e mail me if you want one i can sell you one from the UK NF association. ... braceltes that so many people wear for different causes? ... a team in...
yes I'd like one. What does it look like? lilliethepink1968 <no_reply@yahoogroups.com> wrote: In uk we do e mail me if you want one i can sell you one from the...
Hi All For UK members, In Real People Magazine dated 2nd Nov out today on page 47 you will find an article about Hannah and Neurofibromatosis Elizabeth...
Hi Sherrie Are you running the marathon yourself? If so, good luck to you. I ran the Dublin City marathon in 2003 and 2004. Piece of cake........! (lol) ...
Oh no I am not running the marathon. I live in FL. I also have a artifical hip ((due to the NF ) and can't run. I DID however run the Olympic Torch in 2001 ...
Hi Pitbull I left a message in the newnfclub also, the test I know about is with a drug called Lovastatin maybe help in learning, this drug might be the one...
Boooooooooo! Happy Halloween to everybody who celebrates it. To those of you who don't, sorry hope I didn't offend anyone. Are there any horror movie finatics...
Hi Jim, really can't say what my favorite movie is I've seen so many. I will think about it though. Come on people, there has to be others out there that like...
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