Long weekend for those of us in the USA, The wife and I are driving about 140 miles to see my family, not much sleep last night got home from work 1am in bed...
Hi there everyone, couple of questions !! I have recently been suffering from epilepsy i am now 35 and had my first attack last week and I was wondering if...
Bill, My older son does not show any signs of NF, and NF does not to my knowledge run in our family at all. Neither Me or Dad have it either. My son has been...
I AM FAT!! I was bored and Paul said for me to go shopping and get some nice clothes for interviews and stuff. I went to JC Penny and the size I used to be in...
Sherrie, don't say that!, I use to be 185, now i am 240ish and after this week maybe closer to 250, well i know as a guy society doesn't seem to care (yeah...
I cannot believe I actually found a site about NF!!!!!! I am thrilled. I am 24 (almost 25) and my NF was discovered when I was 7. I developed a tumor, pretty...
Does anybody out there have a myspace page? I know yahoo can be fussy sometimes with posting emails, so I was thinking if anybody wanted to share their...
Are you on myspace? I think I may have found you by your email address. I would love to add you if you are. _____ From: neurofibromatosis2@yahoogroups.com ...
I know exactly how you feel! My NF was discovered at 6 mo old. I have a lot of cafe au lait spots and freckling. Lots of subcutaneous cysts. HAd my first surg...
I worry about this too....if you find anything let me know. I definatly dont want my kids going through what I did because of something I gave them.... ... ...
I only have the tumor and the neurofibromas. It makes you feel more incesure on regular days...but now I am planning a wedding...and I'm dreading how the...
I've also had a few surgeries on a tumor near my eye,and I'd also be willing to talk to her. Assure her that you will be waiting for her when she wakes up, and...
What's up Melissa Yeah the emotional pain is very high when you are a little kid and you learn that you have NF1. It's hard to explain your pain, it is hard to...
Hi my name is Elsa im 40 yrs old I have nf1 i have all the cafe spots the freckling all over and of course the dreaded bumps hundres of them i just wanted to...
Actually my name is Stephanie...Mellisa had replied to me too. I finally realized how to rise above the NF in about 1th grade when I had an article written in...
the green cross is if you want to add that person to your email address book if they are not already in there Sherrie Elsa <ehernandez@...> wrote: why is...
Hi Elsa. My name is Sherrie and I am also 40 and I have NF1. I live in FL Elsa <ehernandez@...> wrote: Hi my name is Elsa im 40 yrs old I have nf1 i have...
Melaine EVERYWORD TRUE!!! very nicely said.........thank you for saying what i always felt (and never said) always felt like an outcast......and thank you...
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