Hi Everyone, I have not posted in a while myself as well... The nice weather has kept me busy.... dose anyone have any good or bad news whats new???? Hope to...
I was a member a cou-ple years ago and I am returning. I'll reintroduce myself Sherrie now age 40 I have NF1 daughter Sarah now 6yr old has NF1 we live in FL...
hey all, Just wanted to ask if anyone knew of a really good othopedic surgon. Somewhere in the U.S.. Preferabilty on the eastern coast. But if he or she is...
... bill i know what you mean about pain i have nf1 not to many problems with that outside of the bone in my right leg. than 20yrs ago i got rsd in my right...
There is a excellent Nf specialist in Chapel Hill, NC at the UNC Neurosciences Hospital by the name of Dr. Greenwood. He has been treating me since I was about...
Bill, How long have you been having headaches ? I had them too like no headaches I have ever had, through testing they found I had Glaucoma the pressure was 38...
Hi all, new hope might be possible, a clinic trial study going on now. They are testing lovastatin to see if it will reverse learning disabilities in children...
Note: forwarded message attached. __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection...
Note: forwarded message attached. __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection...
I had really bad headaches back in 1987 and I had a grapefruit sized cyst on lft side of head. They shaved that side of head and opend it up and took it out....
thank you. Cuz I did when I got it not knowing, and it tries to subscribe you to porn groups on yahoo and then forwards email to all on your address book. I...
I think I got lucky it didnt try to subscribe me to any groups it just sent it to groups so far it hasnt sent to any one on my list. I ran a virus scan and...
i do once in awhile get a charley horse in the back of the calf but not a lot sweetnuttin00 <no_reply@yahoogroups.com> wrote: Does anyone get or have leg...
Alli--John--Melanie--and Sherrie thank you for your time to respond. I mentioned a few months back that I had a shunt inserted into my lower spine. To drain a...
Melissa, it looks like we are the only two who live in all of New England. With the exception of my health I wouldn't want to live any where else. BILL...
Greeting From New York! hope everyone is well, I am single, but hope to find someone, but always worry that if i do meet the right woman, having kids could...
it is a 50/50 chance that the child would be born with NF and possibly worse than the parent who has NF. I have mild NF 1 (lots of cafe au lait spots and sub...
Sherrie Thank you! i never knew that it was that much a chance, they told my mother the chances were something astronomical like her winning the lottery...
Hi everybody For those of you who are interested by geneticd I recommend you to read " The selfish gene", from Richard Dawkins. Here I give you a quote " On...
Popsicles!!! Sugeries are tough, but my parents did really well with me - I was in and out of the hospital from birth and pretty well was admitted annually for...
Hope you had a good week I have been working 6 days a week, this passed week only got in 49 1/2 hrs I was gong to work over 4 more hours but the power went out...
I saw the post about the trail - I actually knew about it already through our NF Society and had switched my cholestrol drug to Lovastatin just in case there...
Hi, Just wanted to introduce myself and my son. My son is 4yrs old and was diagnosed with NF1 just a few weeks ago. He also has a small tumor behind the iris...
ashlie, hi. my name is bill. sorry to hear your so has so many problems. tell him a friend in the group says happy b. day. does your other son show any...
Howdy all, I am sending this out to everyone in my address book - Please pray for the following - You may receive this twice - If you do I'm sorry We have a...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
