All I have to say is defently call MD Anderson ask to see a doctor by the the name of Dr. Slopis (not sure if spelling is correct) I went to see him after...
"(she was told that it is likely a pinched nerve, but the doctor didn't seem too certain" the doctor isn't sure what is causing your mother's pain, and hasn't ...
Hi! My name is Sherry, and I joined this group because my mom & sister have NF1. Sis has has large cafe aulait spots since early childhood, and has gotten a...
Note: forwarded message attached. ... Brings words and photos together (easily) with PhotoMail - it's free and works with Yahoo! Mail. My name is Troy Bahten,...
My name is Troy Bahten, I have NF. as far as we can tell it is NF2 because I have more simptons ao NF2 rather than NF1. My tumors are quite notisable. My face...
I have had bumps removed by laser mainly from my body. The scars are really noticeable and are fleshy like blisters especially on my neck and shoulders. The...
I have had bumps removed by laser mainly from my body. The scars are really noticeable and are fleshy like blisters especially on my neck and shoulders. The...
Don't think so negative theres some one for everybody. People can see when you have low self esteem about your self. carolinacpnter@... wrote: im 41...
Hi All Yes ive had a lot removed from both my front and back using some sort of laser/lazer ok it leaves a scar but there's no lump !! I have the larger ones...
Bill, Not ALL ladies are that shallow. Many people can overlook the nf. After all, there are many diseases and disorders that leave people looking different....
Its hard to accecpt NF1, but once you get passed it you'll live your life better. But its also feels better to know there's someone to talk to and who can...
... NF and so dose my yaoungest son as well as my B friend. We meet in the room. ... everyone! ... time! ... No I do not know about the chat room,but it would...
it is hard at time..Do you know about the chat room ? I also have NF and so dose my yaoungest son as well as my B friend. We meet in the room. fire21_98...
... because they are still young and I have no idea what will happen as they grow.as for me I did not know I had nf til I had my first child and now it seems...
bill, is there alot of predjudice in the south? my roomates from college were from the carolinas, and some of my friends, who were black, would occasionally...
Hello,everyone I found out five years ago that I had Nf whenI was 18. That is when I had my first son.. I still have a very hard time to accept everything! I...
Fire if you would like to chat you can IM me Yahoo- bigred410 Melissa ... From: fire21_98 <no_reply@yahoogroups.com> just saying Hello,to everyone! I just...
... ? __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com...
... attachments. kiss kiss my sweets.. I wish you all the best... and if you ever want to talk just send and IM or email... you are not alone... love Lisa ...
Hi any welcome trinitrucey <trinitrucey@...> wrote: I just found out I got the results from my doctor today SPONSORED LINKS Neurofibromatosis United...
Well, if you have NF1 you go through a lot of issues and you will be a lot of time misunderstood. You can't change your genetic make up until now but you can...
No you should never feel that way because theres always someone for everyone. Believe me your not the only one who feels that way. you can e-mail me my name is...
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