it is hard at time..Do you know about the chat room ? I also have NF and so dose my yaoungest son as well as my B friend. We meet in the room. fire21_98...
... NF and so dose my yaoungest son as well as my B friend. We meet in the room. ... everyone! ... time! ... No I do not know about the chat room,but it would...
Its hard to accecpt NF1, but once you get passed it you'll live your life better. But its also feels better to know there's someone to talk to and who can...
Bill, Not ALL ladies are that shallow. Many people can overlook the nf. After all, there are many diseases and disorders that leave people looking different....
Hi All Yes ive had a lot removed from both my front and back using some sort of laser/lazer ok it leaves a scar but there's no lump !! I have the larger ones...
Don't think so negative theres some one for everybody. People can see when you have low self esteem about your self. carolinacpnter@... wrote: im 41...
I have had bumps removed by laser mainly from my body. The scars are really noticeable and are fleshy like blisters especially on my neck and shoulders. The...
I have had bumps removed by laser mainly from my body. The scars are really noticeable and are fleshy like blisters especially on my neck and shoulders. The...
My name is Troy Bahten, I have NF. as far as we can tell it is NF2 because I have more simptons ao NF2 rather than NF1. My tumors are quite notisable. My face...
Note: forwarded message attached. ... Brings words and photos together (easily) with PhotoMail - it's free and works with Yahoo! Mail. My name is Troy Bahten,...
Hi! My name is Sherry, and I joined this group because my mom & sister have NF1. Sis has has large cafe aulait spots since early childhood, and has gotten a...
"(she was told that it is likely a pinched nerve, but the doctor didn't seem too certain" the doctor isn't sure what is causing your mother's pain, and hasn't ...
All I have to say is defently call MD Anderson ask to see a doctor by the the name of Dr. Slopis (not sure if spelling is correct) I went to see him after...
Good Luck. I have the same problem finding a Doctor. If you have not already try going to www.nf.org and look under find a Dr. Hopefully there is one near you...
Hi troy, It is debbie, how are you doing? I am glad to hear you are still doing good after surgery. My son will probably be here next week. Glad you like the...
Mom had 2 MRI's, but the doctor didn't seem sure that surgery would help,or even make her worse (even cause paralysis.) The doctors she has seen do not...
Note: forwarded message attached. ... Brings words and photos together (easily) with PhotoMail - it's free and works with Yahoo! Mail. ... From: "Brooks,...
thanks for clarifying -- I have issues with doctors who don't know about NF but still try to work on people. It can be dangerous, so she would be lots better...
thanks for clarifying -- I have issues with doctors who don't know about NF but still try to work on people. It can be dangerous, so she would be lots better...
hello for everybody, here we had the carnival believe that many already heard to speak, it is a popular party where has a lot of happiness a lot of color,...
Hi Mara: Your English is confusing, but I think that you are asking if menopause and hormones will affect your NF. The answer is most cases yes. Do not use...
"No cure?" "Oh but that's okay, we will just get them out of the way as they grow." The doctor said with a smile on his face. "But I have so many of them all...
For those of you in here that insist on referring to us as freaks and pitiful creatures that no one will ever think of as "charming"... we have a choice. that...
What kind of logic is this, may I ask, to compare yourself to the least unfortunate people in the world just to make you feel better about yourself? I merely ...
I really don't know how to respond to you. You seem to be a very angry person, and have a negative response to everything. I feel that its way off base to...
Let me preface this by saying that I am not taking sides, if there is one to be taken. But in reality what one has to deal with is relative to them. It is...
... I do agree this is very scary!!!!! We do not know what will happen in 10 years!!! or sooo. I do worry about my self lots and cry lots I do wish everyday...
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