My 6 month old son was just diagnosed with NF1. We have an MRI and an eye appt on the 26th of January to check for brain and eye tumors. This was a genetic...
it normor for people to have nf1 i have nf2 trust me yall are going to be fine.p.s write back scott_jen_99 <scott_jen_99@...> wrote: My 6 month old son...
it normor for people to have nf1 i have nf2 trust me yall are going to be fine.p.s write back scott_jen_99 <scott_jen_99@...> wrote: My 6 month old son...
Hi Jen, How was he diagnosed, if you dont' mind my asking? I know the facts about NF can be scary, but there's a wide range of complications and symptoms --...
Thank you for the reply. I'm worried sick right now but trying to avoid it. He was diagnosed because at 2 weeks he started getting the cafe au lait spots....
Jen, I am from Arkansas. I dont have nf but i have 2 daughters and a husband that have nf1. we found out that the oldest daughter and husband had nf1 when...
that spots are normor the spots are where the tumors grow in the spots if he did not have the spots the tumors wiil grow on the skine. i got to jet talk to you...
The spots mean there are tumors there? Or that's where they will grow when he does get some? ... spots if ... to ... an ... that ... about ... have ... to...
the spots do not mean that there are tumors. ... From: "scott_jen_99" <scott_jen_99@...> To: <neurofibromatosis2@yahoogroups.com> Sent: Monday, January...
Whats do you mean NF1 is not normal, What is so different about NF2? ? yvonne <yvonnelucy2005@...> wrote: Hi my name is Yvonne I am 28 with NF2. I am...
I didn't mean to sound rude I was asking a question No hard feelings. yvonne anderson <yvonnelucy2005@...> wrote: I was reply to message left by Thomas...
Acutally... my doctor told me that where I had purplish spots on my body, that almost looked like small, translucent bruises, is where tumors would grow...
Shanetta, Its the hormones from pregnancy that affect NF -- because NF is a sex-related genetic condition. However, even if you don't have kids, birth control...
Jen, Good luck with the MRI on the 26th -- hopefully nothing will show up. IT would be nice if the NF chapter nearest you had a support group. The one closest...
I am 33 as of 1-7-06.I have nf also,I have had 9 surgeries to remove the tumors alone,3 surgeries were to remove a tumor the size of a tangerine which grew...
I have a few of those purplish spots - they feel like there is no skin tone or fat underneath. I've never had anything form there except that. But then I have...
My name is Angie. I have NF1. God has really blessed me. When I was in the 2nd grade I had brain surgury for an optic glioma. The Dr. said he couldn't...
Hi Angie~ Glad to hear things turned out well for you and you are reaching your goals. I have NF1 also, and I am from Strongsville, Ohio! Glad to meet a...
Hi Angie---My name is Dora and my youngest daughter, Robyn has NF1. She is twelve. She has had some small tumors removed from her body, none in the central...
lol, small world... we stayed at a hotel in Berea when my husband when t to a browns' game. :P ... NF1. She is twelve. She has had some small tumors removed...
I wonder if anyone can help me with a couple of questions: if a C.A.L.M is biopsied, is it possible to have a normal epidermis and, in the dermis, an increased...
I hope everyone is doing well. Things are well here. No, I have never been to Berea and I don't know where it's at. I'm terrible with directions. I started...
Hi Lisa I'm Mel and also have NF1. where do you live? I'm in Bristol UK Mel Lisa Johnson <silly_mau@...> wrote: i have NF1 if anyone ever wants to meet...
... Hi Mel, I'm from Cambridge Ma... I live near Harvard.... My IM is silly_mau also at yahoo... please feel free to add to the IM... I would like to chat...
... I was just there last spring !!!! I stayed in Charlotte for four days... I had fun... 2 bad we didn't know each other than.. we could have had coffee or...
... do you ever make it up North? what kinds of things do you like? do you have a profile on yahoo? Lisa __________________________________________________ Do...
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