My daughter is 9 and has nf1. She had her inital mri in aug 05 and we told it was normal except for intensities. Today we came back from Cleveland Clinic for...
... and we ... from ... abnormally ... hamatomas. ... help? ... Venous aneurysm, arterial dysplasia, and near-fatal hemorrhages in neurofibromatosis type 1. ...
Hi my name is shanetta and I am 20. I have NF1. I would suggest you get a medical dictionary to help you. lilliethepink1968 <no_reply@yahoogroups.com> wrote:...
NF runs in my family, from my dad's family. Both of my siblings have NF2. I got lucky. My question is that, do you have to have NF itself for your children...
Hey there Im robert i have nf 1 and i didnt know i had it till i was 12 mine was a genetic mutation crystalfacemyer <crystalfacemyer@...> wrote: NF runs...
Hey there Im robert i have nf 1 and i didnt know i had it till i was 12 mine was a genetic mutation crystalfacemyer <crystalfacemyer@...> wrote: NF runs...
My name is Shanetta and I am 20 I have NF. I really don't know how genetics works with who will get what. But I am the only one in my family who has it that I...
First the easy question. You cannot pass on NF if you do not have NF. Now for the harder question. NF2 often shows up later in life, but before you are 30....
In Mosby's Medical Dictionary, the closet word I could find was a "hamartoma", which is defined as "a new tissue growth resembling a tumor. I results from a...
The only thing that comes to mind is that many people with NF, esp. children, have UBO's Unidentified White Objects or white / bright spots in the brain. They...
It seems that freckling is a major part of NF - the skin folds, the eyes - so maybe this is just another form of freckling? Sandra - think outside the box ... ...
... also had type 2 my side of the familys theres no trace of the diesease, and my ex husand didnt have the disease either but my son got it ,so u have the...
hi im robin my son had the diesease and my husband didnt hes got family members with. his sisters grandbaby has the spots and he has cousins with it. u...
No not myself I've never heard of UBO'S before. Lizzi B <lizzibordon@...> wrote: It seems that freckling is a major part of NF - the skin folds, the...
my name is scott i was born with nf and my mom has nf two and she was the only one in her family she has four brothers and three sisters they donot have nf ...
Hi my name is Shanetta and I was born with NF1. And nobody in my family has it. SCOTT JARMON <bamafan_899@...> wrote: my name is scott i was born with...
I posted sometime early this year about concerns that I have NF. It seems like it's pretty much confirmed. I'm nine weeks pregnant and panicking, reading too...
aresnic_and_anise I had two pregnancy's I had no trouble with either. My oldest has NF1 the same as i do my youngest is NF free. My first baby i was in labor...
I had no problems with either of my pregnancies. I have NF1 - spontaneous mutation - and it looks like neither of my kids have it. They are 16 and 11. The...
I can only tell you that when during my pregnancy with my 1st child is when my NF started coming out. The tumors and such, before that all I had was the brown...
Hi my name is Shanetta and I have NF1. I need someone to talk to with the same situation to help me deal with it more. If you are able to help please respond....
Hello everyone, hope everyone is well, sorry for not been around a lot recently but been really busy. Take care and hope to catch up with whats been going on...
robingrant i was in birmingham in 1997 i had surgery on the back of my neck ... __________________________________________ Yahoo! DSL – Something to write...
Dear Rhonda, Thanks for your advice. My baby daughter is now almost six month, she had been dignosed that she may be suspected NF1 because of the brown...
... Yes, NF symptoms can worsen somewhat during pregnancy. As far as your symptoms, you may get a few more bumps or those you have may get a little bigger....
Dear Dan, Thanks for your information. My baby daughter had been diagnosed as a probable NF1 case. We came to the doctor who is very famous in TWN medical...
Thank you for the information it really going to help me determin a more easier decsion. ... Yes, NF symptoms can worsen somewhat during pregnancy. As far as...
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