Just wanting to say hello and I look forward to getting to know more people with NF. My dauhgter was diagnosed earlier in the year, and although I have not...
... Glad to see someone else from Texas here... I live in Baytown and also have NF... Both my children have/had NF.... My father and all my sister and brother...
Well hello Debi and thank you for the warm welcome. My daughter is 9, I am 33. When I was younger I had a little sister that they believed probably had NF....
Hi Chelle, Michelle my daughter had a Thyroid Storm that killed her.. I miss her so much... She was to young to leave us.... I will pray for you and your...
Hi!! My brother and Mom both have NF1. I live in Northern Indiana (Nappanee - close to Elkhart) and I just finished the Portland Marathon last week-end where I...
Hi Joey, I'm from Wisconsin here. I'm 27, recently married, and have a baby on the way. :) he's actually due any day now, so have been pretty busy getting...
Does anyone happen to have spinal tumors that has also had a baby? Are epidurals dangerous with spinal tumors? I'm planning on going natural, but of course...
I have spinal tumors all up and down my spine, although I am a guy I still wanted to let you know if you can I would not do the epidural because my doctors say...
Hi there.. I am a mother of a daughter who was today diagnosed with probable NF 1.. She has the cafe au lait spots and the freckling in the groin area... her...
hi in answer to your question at this point and time just watch her.my family is in its 4th generation of nf1. my moms body is covered with the fibroma as is...
Am actually planning on going natural, but was wondering about epidurals in case of having to have a c-section. hpefully won't be necessary, but would like to...
HI Kristyn, I haven't read the other replies yet, so hope I'm not being redundant, but go to www.nf.org They have an excellent informative site, and you can...
Some of my friends have managed to meet a few nice ones off this thing (here is the place they told me: http://www.justenjoy.info/kztvt , but what do you guys...
suzan.johnston8309@...
Nov 1, 2005 3:45 am
5111
Hi Everyone Its been ages since ive visited the site but im after some info if possible I have NF1 which is pretty bad covering my entire body and of course...
Hi Paul, How about swimming trunks and a tee shirt.... Jenny ... From: polarman47 To: neurofibromatosis2@yahoogroups.com Sent: Wednesday, November 09, 2005...
You have a great attitude carolinacpnter, I have always been depressed. I blame it on my NF. Can anyone, all of you who love yourselves please tell me how to...
... I think we ALL get depressed about having this disorder. Some days are worse than others....some real bad, some very good. We have to remember to look...
Thanks Rita, That was well said....almost my exact emotions about this difficult to live with disorder...I have had some removed but the doc did not do a very...
Hi Folks its so good to hear from people who are in the same predicament. Firstly Jenny yes i wear a trunks and a vest in most places, but unfortunately there...
Hi Paul, I didn't think about the fact that most places don't want you wearing a tee in the pool. I know what you mean about the kids. I wonder if we all get...
I have been reading the messages that have been exchanged the last couple of day. I am 31 years old and was dia. w/nf at 4years old. The last 10 years or so...
Tammy I get all those same feelings.......sometimes hopeless....I have some good days, some bad days, some worse....I ma married and my husband accepts it...
Jenny I live in Texas, my doctor is Dr. Rodriquez in San Marcos, (San Marcos Laser Center). But you shoulnd't have to look for a dr. Your insurance will cover...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
