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Peace out

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-------------- Forwarded Message: --------------
From: Jen Knight <jknight@...>
To: sethsmom@..., Sexybella524@..., LyssaG16@..., knikatknight@...
Subject: Fwd: FW: PLEASE LOOK AT PICTURE AND FORWARD!
Date: Mon, 22 Aug 2005 20:44:01 +0000

X-Sender: mhay@...
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Date: Mon, 22 Aug 2005 10:26:26 -0400
To: anne_heymann@...
From: Michelle <mhay@...>
Subject: Fwd: FW: PLEASE LOOK AT PICTURE AND FORWARD!
Cc: staechon@..., Cathyathb@..., vreid@..., bean@...,
   mmkoellner@..., kmerryman68@..., dmasters@...,
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   AngPhoto@...

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Date: Mon, 22 Aug 2005 09:14:24 -0500
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Thread-Topic: PLEASE LOOK AT PICTURE AND FORWARD!
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From: "Lam, Kim P." <Klam@...>
To: Jean.Burns@...,
   "Laura Drivick (E-mail)" <ldrivick@...>,
   "Michelle" <mhay@...>, "Luce, Ken J." <Kluce@...>,
   "Glenn McCuan" <gmccuan@...>
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-----Original Message-----
From: Munoz, Samantha
Sent: August 22, 2005 8:32 AM
Subject: FW: PLEASE LOOK AT PICTURE AND FORWARD!

 

 

-------Original Message-------

 


 

PLEASE LOOK AT PICTURE AND FORWARD!



If anyone anywhere knows anything, sees anything, please contact the original screen name that sent this, which is CMINEO0295@...

LOOK AT THIS PICTURE AND THEN FORWARD -- PLEASE DON'T DELETE PLEASE LOOK AT PICTURE THEN FORWARD I am asking you all, begging you to please, forward this email on to anyone and everyone you know, PLEASE.  I have a 5 year old son named Christopher John Mineo Jr, nickname C.J.  I am from Brooklyn N.Y. He has been missing since May 11  I am including a picture of him. All prayers are appreciated!!

It only takes 2 seconds to forward this on, if it was your child, you would want all the help you could get.  Please.

Christopher John Mineo Sr

Stephanie M. Lawton, Office Manager

New York State Independent Living Council, Inc.

111 Washington Avenue, Suite 101

Albany, New York 12210

All prayers are appreciated!!



 

 

 

 

 

 

 

 

 

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Note: forwarded message attached.


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Hi, I think you need to go to a NF clinic and have a dr see you there.
  Women with NF have breast tumors, CLS too.  There appears to be alot
of cross over diseases which just add to the confusion drs have to
sort out all the diseases and pick one.  Not to easy to do.  A NF
specialist dr would know more.  I hope you get a second opnion.

Liz

**********************************************



--- In neurofibromatosis2@yahoogroups.com, "ophydia_ryce"
<naughtync17rper@g...> wrote:
> I don't know if I have NF, but here is what has me concerned. Last
> October I noticed that I had four cafe au lait spots under my left
> breast. Since then, that four has become a cluster of larger spots,
> with another six developing. I'm 25 years old.
>
> I've had problems with my breasts for years. I went to a doctor once
> and she told me it was cystic breast disease. She wouldn't do a
> mammogram or anything, and it still bothers me. I'm worrying that the
> cysts could really be tumors, seeing that they have never disappeared.
> In addition, the is a bunch of cancer up both sides of my family, my
> mother is being diagnosed for MS or some other grey matter disease and
> my aunt has Neurofibromyais (sp?). Does anyone know if any of that
> could up my chances?
>
> Really, I have no idea if it's normal to go from no spots to four to
> thirteen in less than a year and if that has ever happened to any of
> you. Because of all the issues in my family, I'm really scared but at
> the moment I don't have medical insurance so I can't go to the doctor
> until later this year when I get it. I have severe psychological
> issues, I was born pigeon toed, though it was corrected, and have
> scoliosis they said comes from having one leg longer than the other.
>
> I know if it's NF that it doesn't necessarily mean I'm going to have
> problems, but if anyone has any knowledge about this stuff, I would
> really like to hear from you. Thank you.

Note: forwarded message attached.


__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
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Note: forwarded message attached.




____________________________________________________
Start your day with Yahoo! - make it your home page
http://www.yahoo.com/r/hs

-------------- Original message --------------
--- In neurofibromatosis2@yahoogroups.com, melissa_b_murphy@c... wrote:
> Robert,
>
> Where abouts in MA are you? I live in MA as well, roughly 20 minutes
west of Boston (whithout traffic that is) But then again whats Boston
w/o traffic LOL.
>
> Melissa
>
> -------------- Original message --------------
> Hello brant My name is robert and I Have NF1 I have a family history
> with nf with 4 of my brothers and 1 sister with nf as well as 5
> cousins that I know of that have it. we are from massachusetts
>
>
>
>
>
> SPONSORED LINKS Neurofibromatosis United kingdom
> I live in woburn now
>
>
> YAHOO! GROUPS LINKS
>
>  Visit your group "neurofibromatosis2" on the web.
>  
>  To unsubscribe from this group, send an email to:
>  neurofibromatosis2-unsubscribe@yahoogroups.com
>  
>  Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.

-------------- Original message --------------
--- In neurofibromatosis2@yahoogroups.com, melissa_b_murphy@c... wrote:
> Robert,
>
> Where abouts in MA are you? I live in MA as well, roughly 20 minutes
west of Boston (whithout traffic that is) But then again whats Boston
w/o traffic LOL.
>
> Melissa
>
> -------------- Original message --------------
> Hello brant My name is robert and I Have NF1 I have a family history
> with nf with 4 of my brothers and 1 sister with nf as well as 5
> cousins that I know of that have it. we are from massachusetts
>
>
>
>
>
> SPONSORED LINKS Neurofibromatosis United kingdom
> I live in woburn now
>
>
> YAHOO! GROUPS LINKS
>
>  Visit your group "neurofibromatosis2" on the web.
>  
>  To unsubscribe from this group, send an email to:
>  neurofibromatosis2-unsubscribe@yahoogroups.com
>  
>  Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.

I don't know if I have NF, but here is what has me concerned. Last
October I noticed that I had four cafe au lait spots under my left
breast. Since then, that four has become a cluster of larger spots,
with another six developing. I'm 25 years old.

I've had problems with my breasts for years. I went to a doctor once
and she told me it was cystic breast disease. She wouldn't do a
mammogram or anything, and it still bothers me. I'm worrying that the
cysts could really be tumors, seeing that they have never disappeared.
In addition, the is a bunch of cancer up both sides of my family, my
mother is being diagnosed for MS or some other grey matter disease and
my aunt has Neurofibromyais (sp?). Does anyone know if any of that
could up my chances?

Really, I have no idea if it's normal to go from no spots to four to
thirteen in less than a year and if that has ever happened to any of
you. Because of all the issues in my family, I'm really scared but at
the moment I don't have medical insurance so I can't go to the doctor
until later this year when I get it. I have severe psychological
issues, I was born pigeon toed, though it was corrected, and have
scoliosis they said comes from having one leg longer than the other.

I know if it's NF that it doesn't necessarily mean I'm going to have
problems, but if anyone has any knowledge about this stuff, I would
really like to hear from you. Thank you.

--- In neurofibromatosis2@yahoogroups.com, melissa_b_murphy@c... wrote:
> Robert,
>
> Where abouts in MA are you? I live in MA as well, roughly 20 minutes
west of Boston (whithout traffic that is) But then again whats Boston
w/o traffic LOL.
>
> Melissa
>
> -------------- Original message --------------
> Hello brant My name is robert and I Have NF1 I have a family history
> with nf with 4 of my brothers and 1 sister with nf as well as 5
> cousins that I know of that have it. we are from massachusetts
>
>
>
>
>
> SPONSORED LINKS Neurofibromatosis United kingdom
> I live in woburn now
>
>
> YAHOO! GROUPS LINKS
>
>  Visit your group "neurofibromatosis2" on the web.
>
>  To unsubscribe from this group, send an email to:
>  neurofibromatosis2-unsubscribe@yahoogroups.com
>
>  Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.

-------------- Original message --------------
Hello brant My name is robert and I Have NF1 I have a family history
with nf with 4 of my brothers and 1 sister with nf as well as 5
cousins that I know of that have it. we are from massachusetts

Hello brant My name is robert and I Have NF1 I have a family history
with nf with 4 of my brothers and 1 sister with nf as well as 5
cousins that I know of that have it. we are from massachusetts

I just joined this group.I'm think its really cool that there is
something like this out there,Just wish i would of found it earlier
than now.Well I'm 16 year guy with NF and i live in Iowa And just was
looking for some people who now what i'm going through and people i
can talk to........

Hello!
Look at this healthcare information directory.
URL : http://www.hi-fiweb.com/users/anusha/
Cheers!
Amitha

its for both. i have nf1 and my name is trish.



____________________________________________________
Start your day with Yahoo! - make it your home page
http://www.yahoo.com/r/hs

Is this the correct site to correspond with people who have NF1 or is
it for people with NF2 only?

--- In neurofibromatosis2@yahoogroups.com, "Amy" <dstydream@a...>
wrote:
> I have been reading the recent posts from those that are depressed
> and alone.  I don't have NF, but my 8 year old son does.  We don't
> have a history of it in either my family or his fathers.
>     I completely understand about the feeling depressed and alone.
I
> was married and he was very abusive.  I stayed for a long time in a
> horrible marriage because I was afraid that I would be alone for
the
> rest of my life.  Here I am, not the most beautiful person in the
> world, definately not the model skinny person, and the single
mother
> of two children that are sick (one more than the other).  It took
me
> a long time to decide that I could be miserable on my own, I didn't
> need help.  He made me think that there would be noone in the world
> that would want me or love me.  I finally decided that I was worth
> loving.  I wasn't this horrible person that he made me feel like.
I
> do have something worth offering to another person.  I am sweet,
> kind, loving, compassionate and I would do anything for my
children.
> If someone can't see that then it is their loss.  Since my divorce,
I
> have met the most wonderful man.  He loves me for me.  He is
> understanding, compassionate and I tell him he is blind..... he
> thinks I am gorgeous...lol  It was only when I made the decision to
> accept me with all of my imperfections that I found someone to love
> me for ME... not for who they want me to be or want to make me.
> It isn't easy but it really has to be a decision.
>
> Amy



I just wrote a huge message....and lost it somehow on the board.  I
have no idea how.  I wanted to post it and surely do not feel like
typing it all over.  Either I see it here with the group....or it
ended up in someones mailbox.  Please let me know!

Hi everyone. Im 32....23 mentally though :P  I have NF2, and am
recovering from 3 brain surgeries.... so Im not able to walk yet and
I
am pretty grotesque due to all the meds and  scars and what not. If
anyone wants to talk, ever, about anything, I am here. please post
here or email me (not sure if my email shows up in this forum) but I
am always willing to lend an ear...  well the one that can still hear
anyways. lol.

w/love to all,

Kare-bear

I have been reading the recent posts from those that are depressed
and alone.  I don't have NF, but my 8 year old son does.  We don't
have a history of it in either my family or his fathers.
     I completely understand about the feeling depressed and alone.  I
was married and he was very abusive.  I stayed for a long time in a
horrible marriage because I was afraid that I would be alone for the
rest of my life.  Here I am, not the most beautiful person in the
world, definately not the model skinny person, and the single mother
of two children that are sick (one more than the other).  It took me
a long time to decide that I could be miserable on my own, I didn't
need help.  He made me think that there would be noone in the world
that would want me or love me.  I finally decided that I was worth
loving.  I wasn't this horrible person that he made me feel like.  I
do have something worth offering to another person.  I am sweet,
kind, loving, compassionate and I would do anything for my children.
If someone can't see that then it is their loss.  Since my divorce, I
have met the most wonderful man.  He loves me for me.  He is
understanding, compassionate and I tell him he is blind..... he
thinks I am gorgeous...lol  It was only when I made the decision to
accept me with all of my imperfections that I found someone to love
me for ME... not for who they want me to be or want to make me.
It isn't easy but it really has to be a decision.

Amy

Cobra's right - suicide doesn't end the pain, it only causes pain for
someone else.  My cousin's dad commited suicide when she was 15 and
she was devastated.  My friend's dad commited suicide; he hung
himself.  Her 3 y/o brother found him.  Imagine trying to explain to
him what he saw.    To the people that love you, it doesn't matter
what you look like.  They love you for who you are, not what you are.
Don't hate yourself so much that miss out on what's right in front of
you.  A wife and two kids that love you and would be devastated if you
died.   Its not worth giving up, is it?  Some people in here would
give anything to have a wife and kids who loved them.  Its very
understandable to be depressed about the way you look (none of us like
having NF), but don't let it run your life.  I get depressed when I
stand in front of the mirror and see the bumps.  But short of having
all over plastic surgury, there's not much I can do about it.

Ab out the only chance any of us have of that extensive of plastic
surgury is winning  a spot on "Extreme Makeover" -- which is about as
likely as winning the lottery.

Take care, and odn't give up,

Nroa

--- In neurofibromatosis2@yahoogroups.com, cobrassb140 <no_reply@y...>
wrote:
> I know how many of you feel.Im 42 have NF1 Dan you say sucide ends
the
> pain,but what about the never ending pain your wife would be in for
> the rest of her life.Think about it.you have to live for her.
>   Amy I think that you have 2 beautiful kids I know you have been
> through a lot,but God knows you can handle all this.You are a
beautiful
> person.I dont have a gf,have met several but the NF scares them
off.My
> dad has it and is covered,mine isnt as bad as his is,but bad
enough.I
> feel so alone at times,but know I gotta keep going for my family.I
> lost my mom in 2003(not nf related)and that about killed me.I
thnought
> my world ewas over.I know(or hope)someday I will find love.I have
more
> friends on the internet than i have that lives close to me,and I can
> depend on those friends,2 of who has NF.Feel free to drop me a line
if
> you need to talk to someone.

I know some of our members in here are from the UK; not sure what
part, but just wanted you to know I'm thinking of you and your fellow
Britons -- hope and pray that no one in here or anyone they love was
hurt in the attacks this morning.

I know how many of you feel.Im 42 have NF1 Dan you say sucide ends the
pain,but what about the never ending pain your wife would be in for
the rest of her life.Think about it.you have to live for her.
   Amy I think that you have 2 beautiful kids I know you have been
through a lot,but God knows you can handle all this.You are a beautiful
person.I dont have a gf,have met several but the NF scares them off.My
dad has it and is covered,mine isnt as bad as his is,but bad enough.I
feel so alone at times,but know I gotta keep going for my family.I
lost my mom in 2003(not nf related)and that about killed me.I thnought
my world ewas over.I know(or hope)someday I will find love.I have more
friends on the internet than i have that lives close to me,and I can
depend on those friends,2 of who has NF.Feel free to drop me a line if
you need to talk to someone.

Littlenloud  i agree with you 100%.. You get back what you put out
there have a postive outlook on life.. All of us that have NF have it
for a reason.  Some deal with it better than others....  I dont care
what people think of me.. Im me and thats all that matters..


IM PERFECT IN GODS EYES

Hi Tammy,

I also have NF and I also live in Texas... There a a few people in my area
of the state that also ahve NF... Would love to chat with you sometime

Debi

I found this service that helped me refinance my home mortgage saving me
thousands of dollars a year. All the information is right here. 
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