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I am a 27 year old female from Saskatoon, Saskatchewan. I was diagnosed with NF at age 15, there is no one else in my family with it. I have had 1 surgery to...
Hi brant, welcome to the group. I was diagnosed with NF when I was 16; at the time, the only other person with NF that I knew was my dad, but it would have...
HI, I am also a 27 y/o female, and have NF as well. I'm from Wisconsin. Feel free to email me if you want. It's always nice to meet other people with NF. Take...
Hi I'am a 53 year old female form Idaho feel free to e-mail me I would also be glad to talk with u -- In neurofibromatosis2@yahoogroups.com, "littlenloud" ... ...
Hi Everyone! I'm brand new to the group. I'm 34 with spontaneous NF that resulted in the loss of one of my eyes and extensive facial surgery. I'm married with...
I agree with Elizabeth that it's best to consult a doctor - especially with there being NF in the family, but in my experience it's not unusual to develop new...
My 9 year old son has been diagnosed with NF1/bow tibia since the age of 4 months. At that time we were told by doctors that there was a 50% chance that his...
I had Pseudoarthrosis in my right tibia due to NF1. I am 47 and they did not know enough to brace the leg when signs were evident, so my tibia broke at 14...
Hello! My name is Xenia i'm 32 year old female from the Philippines. I have nf1. Yes, this is the site for nf1 and nf2. hope to hear from you again. Take care...
Hi Xenia, I have to say that I really like your name... I use to live on a street named Xenia Ave. I never heard the name before... I also have NF.. Debi ... ...
Well, I had depression for a long time, even as a kid a little bit, but alot as a teen. I wasn't even diagnosed until i was 16, and never had any kind of...
I have the same thing... hardly any tumors externally, but lots internally. But I did have small tumors on skin, but they looked more like acne than NF. And...
Just a friendly "HELLO"back to you.Im 42 i have NF1 and have met a few really nice ppl with in the NF groups,for there are several that i have joined.If you...
Hey, well i don't know of any support groups in iowa there may be some but none that i know........do you live in iowa? if you ever want to talk you can talk...
Just wanting to say hello and I look forward to getting to know more people with NF. My dauhgter was diagnosed earlier in the year, and although I have not...
... Glad to see someone else from Texas here... I live in Baytown and also have NF... Both my children have/had NF.... My father and all my sister and brother...
Well hello Debi and thank you for the warm welcome. My daughter is 9, I am 33. When I was younger I had a little sister that they believed probably had NF....
Hi Chelle, Michelle my daughter had a Thyroid Storm that killed her.. I miss her so much... She was to young to leave us.... I will pray for you and your...
Hi!! My brother and Mom both have NF1. I live in Northern Indiana (Nappanee - close to Elkhart) and I just finished the Portland Marathon last week-end where I...
Hi Joey, I'm from Wisconsin here. I'm 27, recently married, and have a baby on the way. :) he's actually due any day now, so have been pretty busy getting...
Does anyone happen to have spinal tumors that has also had a baby? Are epidurals dangerous with spinal tumors? I'm planning on going natural, but of course...
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