Hello! Get a quick glance of Healthcare News and Resources here http://www.allinonedirectory.info/HealthUpdate/ Take care, Kate ... Yahoo! Mail Stay connected,...
I just joined this group.I'm think its really cool that there is something like this out there,Just wish i would of found it earlier than now.Well I'm 16 year...
Hello brant My name is robert and I Have NF1 I have a family history with nf with 4 of my brothers and 1 sister with nf as well as 5 cousins that I know of...
Robert, Where abouts in MA are you? I live in MA as well, roughly 20 minutes west of Boston (whithout traffic that is) But then again whats Boston w/o traffic...
I don't know if I have NF, but here is what has me concerned. Last October I noticed that I had four cafe au lait spots under my left breast. Since then, that...
Robet All that came through was your name. Where abouts in MA are you? I think I may know. I think I found a clue based on your name. Melissa ... west of...
Robert, I just reread your email. I noticed your answer was at the bottom. That is what I thought. I figured the number by your name to be the zip code. I live...
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Hi, I think you need to go to a NF clinic and have a dr see you there. Women with NF have breast tumors, CLS too. There appears to be alot of cross over...
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Note: forwarded message attached. __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection...
I am a 27 year old female from Saskatoon, Saskatchewan. I was diagnosed with NF at age 15, there is no one else in my family with it. I have had 1 surgery to...
Hi brant, welcome to the group. I was diagnosed with NF when I was 16; at the time, the only other person with NF that I knew was my dad, but it would have...
HI, I am also a 27 y/o female, and have NF as well. I'm from Wisconsin. Feel free to email me if you want. It's always nice to meet other people with NF. Take...
Hi I'am a 53 year old female form Idaho feel free to e-mail me I would also be glad to talk with u -- In neurofibromatosis2@yahoogroups.com, "littlenloud" ... ...
Hi Everyone! I'm brand new to the group. I'm 34 with spontaneous NF that resulted in the loss of one of my eyes and extensive facial surgery. I'm married with...
I agree with Elizabeth that it's best to consult a doctor - especially with there being NF in the family, but in my experience it's not unusual to develop new...
My 9 year old son has been diagnosed with NF1/bow tibia since the age of 4 months. At that time we were told by doctors that there was a 50% chance that his...
I had Pseudoarthrosis in my right tibia due to NF1. I am 47 and they did not know enough to brace the leg when signs were evident, so my tibia broke at 14...
Hello! My name is Xenia i'm 32 year old female from the Philippines. I have nf1. Yes, this is the site for nf1 and nf2. hope to hear from you again. Take care...
Hi Xenia, I have to say that I really like your name... I use to live on a street named Xenia Ave. I never heard the name before... I also have NF.. Debi ... ...
Well, I had depression for a long time, even as a kid a little bit, but alot as a teen. I wasn't even diagnosed until i was 16, and never had any kind of...
I have the same thing... hardly any tumors externally, but lots internally. But I did have small tumors on skin, but they looked more like acne than NF. And...
Just a friendly "HELLO"back to you.Im 42 i have NF1 and have met a few really nice ppl with in the NF groups,for there are several that i have joined.If you...
Hey, well i don't know of any support groups in iowa there may be some but none that i know........do you live in iowa? if you ever want to talk you can talk...
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