I found this poem about children with disabilities on a website about a little girl with a genetic condition called TS -- a condition that shares many...
Has anyone that has NF ever been diagnosed with Osteopenia? (loss of bone mass) Jamie has just been diagnosed with it and we are going for more tests today....
hi amy saw your question to soft bone--- i do believe it is related as i was born with only the soft bone in my right leg had countless operations due to it. i...
My son has scoliosis too. He had two metal rods put in his back when he was 5. We just got back from the hospital where he has an ultra sound of his ...
I have Hydrocephalus as a result of NF as well _____ From: neurofibromatosis2@yahoogroups.com [mailto:neurofibromatosis2@yahoogroups.com] On Behalf Of melanie...
thier is also a chat room at nf.org it is open all the time. I go in it some times. In the room I am babygirl. it is fun and all the people are so nice in it...
Hi, How are you my name is Mary and I live in Mississppi in the usa, I also have NF1. I am Married to a great man and we have two sons. The oldest is 20 and...
anybody with nf have any suicide attempt stories???? i am bipolar and have nf, which is a double wammy,and often have suicidal ideations and have in the past...
Yes, I have had these thoughts in the past too. I have MS on top of NF, and at times feel over burden. I have just come to the conclusion that suicide really...
I have thought about it, but have been to chicken to attempt it. My husband has been supportive as I have only recently told him about it. The only thing...
... I don't think there's a single person in this world -- with or without NF -- who has not considered suicide at some point in their lives. I do not have NF...
I would have to agree with Dan. I am 33 years old, a single mom of two little boys. I was in an abusive relationship. My oldest son was born 4 weeks early...
I know it can be hard. I am also 40 and have never been married, or had kids. I will never be able to have kids either because I had to have a hysterectomy...
Angelspirit would like to personally welcome you abord,im a single male 42 with NF1,i have never been married for when i meet someone and tell them about nf...
... never a ... young or now IKNOW EXACTLY HOW YOU FEEL BILL,I HAVE NOT GIVEN UP THO,FOR I KNOW THAT SHE IS OUT THERE SOMEWHERE WAITING,EVEN IF SHE HAD NF,AND...
... friends ... hear ... Hi Barb I know how you feeel have met a few friends on here that has NF,and we have become good friends.If you want someone to chat...
There has been alot of talk about depression over the last few days.. One of the most depressing things about have disfigurements (next to having NF at all) is...
MY NAME IS KARLA AND I HAVE NF1. MY SON AND DAUGHTER ALSO HAD NF1. MY SON HAD A BRAIN TUMOR AND THE AGE OF8 1/2 YEARS THAT LEFT HIM BLIND AND WITH NO FRIENDS...
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