Dan, I have NF and was diagnosed with Breast Cancer in 1997. I did ask my doc about it being related to having NF and he said it was not. My daughter who is...
If your wife has a family history of breast cancer, then I would say she should be checked. Otherwise, unless her doctor reccommends a mamogram, I believe...
Hi, all. It has been a while since I posted last, but a lot has happened. It has been going on 8 weeks with no car. My mom was in the hospital a couple of...
Just thought I'd add that regular self breast exams are important for women of all ages. If you feel anything odd or different to the norm with your body,...
Hi Dan, My name is Mary I have NF1. I am married and have two sons.I have had two surguery do to my NF1. In the one I lost my stomke and all of it to the tumor...
From what I have read... it is possible that Joseph Merrick had NF but he ALSO had other diseases that caused his deformities. It has been written that he did...
Does anyone have or have been diagnosed with Osteopenia? My 8 year old son that has NF has been diagnosed with it and we are being sent to a Renal doctor...
John Merrick had Protues disease. I don't believe he did have NF but he did indeed have Protues........please don't be angry with the other writer is it bad...
I am not mad. When I first learned that my son had NF, we too thought that it was "elephant man" disease or something like it. I apologize if my email ...
HI AMY----HOW OLD IS YOUR SON? I HAVE A DAUGHTER WITH NF AND SHE IS 11, HER NAME IS ROBYN. SHE HAS A MUCH MILDER CASE THAN YOUR SON, BUT I WANTED YOU TO KNOW...
Hello, Yes the old make your peace speech. Been there done that way to many times. Apparently not in gods plans. My son is 6, NF plexiform. And I have...
just joined the room tonight,thought id never find a support group for nf1. now that i have found it i'll have to send my daughter here as we are now in the 5...
Hello from Melbourne Australia. I found you tonight and thought I'd say a quick hello to everyone. I've been reading up on my disorder of late, and never...
... never a ... young or now Hello photoguybill, I'm sorry to hear that. I had very few boyfriends, in fact my husband was my very first boyfriend as such....
Hello my means is Barbara and I have NF and I'm looking for people to chat with and make friends that have NF. I live in Ukiah CA is there anybody who lives in...
Hi All! I am representing my brother, who has NF, in the Portland Oregon Marathon on October 9th and I am trying to raise the $3500 needed to make it out...
Hello Monica, Welcome to the group! I didn't realize that there were so many others who had NF either, until I started doing some searches on the web. NF ...
Hi All! I am representing my brother, who has NF, in the Portland Oregon Marathon on October 9th and I am trying to raise the $3500 needed to make it out...
Hi All! I am representing my brother, who has NF, in the Portland Oregon Marathon on October 9th and I am trying to raise the $3500 needed to make it out...
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