I am just needing a ear to lean on right now. As I posted in early threads, my grandmother passed away in Oct. 2004 with Colon Cancer, My dad was in the...
Dear mom I cant remember if you are in the UK but here in england there are charities that can help. There is no shame in asking for help. you have so much to...
Hey, I was wondering if you could call the school and arrange to have the teacher visit your home and talk with you about your daughter? It sounds like she is...
Hi, To anyone interested, some of us from the NF Chat room, are meeting in Springfield, Illinois on May 21 and 22, 2005. Everyone is welcome. It will be fun to...
My aunt had NF and died in 1990 at the age of 42. At first, she was diagnosed with breast cancer at age 40, had a double mastectomy, but I guess that wasn't...
Dan, I have NF and was diagnosed with Breast Cancer in 1997. I did ask my doc about it being related to having NF and he said it was not. My daughter who is...
If your wife has a family history of breast cancer, then I would say she should be checked. Otherwise, unless her doctor reccommends a mamogram, I believe...
Hi, all. It has been a while since I posted last, but a lot has happened. It has been going on 8 weeks with no car. My mom was in the hospital a couple of...
Just thought I'd add that regular self breast exams are important for women of all ages. If you feel anything odd or different to the norm with your body,...
Hi Dan, My name is Mary I have NF1. I am married and have two sons.I have had two surguery do to my NF1. In the one I lost my stomke and all of it to the tumor...
From what I have read... it is possible that Joseph Merrick had NF but he ALSO had other diseases that caused his deformities. It has been written that he did...
Does anyone have or have been diagnosed with Osteopenia? My 8 year old son that has NF has been diagnosed with it and we are being sent to a Renal doctor...
John Merrick had Protues disease. I don't believe he did have NF but he did indeed have Protues........please don't be angry with the other writer is it bad...
I am not mad. When I first learned that my son had NF, we too thought that it was "elephant man" disease or something like it. I apologize if my email ...
HI AMY----HOW OLD IS YOUR SON? I HAVE A DAUGHTER WITH NF AND SHE IS 11, HER NAME IS ROBYN. SHE HAS A MUCH MILDER CASE THAN YOUR SON, BUT I WANTED YOU TO KNOW...
Hello, Yes the old make your peace speech. Been there done that way to many times. Apparently not in gods plans. My son is 6, NF plexiform. And I have...
just joined the room tonight,thought id never find a support group for nf1. now that i have found it i'll have to send my daughter here as we are now in the 5...
Hello from Melbourne Australia. I found you tonight and thought I'd say a quick hello to everyone. I've been reading up on my disorder of late, and never...
... never a ... young or now Hello photoguybill, I'm sorry to hear that. I had very few boyfriends, in fact my husband was my very first boyfriend as such....
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
