Hi all hoping to find a room to chat in My neurofibromatosis has become a probem with pain and a cycst on my spine.besides having NF1 Im dealing with...
hi my name is cathy cat23. go to www.nf.org the best place to go and talk i am in tere all the time its a great place we are all like family in the room. can't...
hi so am i how old are u bhaybierhed <bhaybierhed@...> wrote: Hi... I'd like to have friends on this group... I'll be glad to have a response with you...
am 26 years young and u?r u a women or a mananyway nice to meet u JUAN RODRIGUEZ <jrodnfone@...> wrote:cool i like to be friends with u charlotte fielden...
Just to let everyone know, next week on BBC1 there is a documentary on BBC1 about Neurofibromatosis. Its on BBC1 Tuesday 15th February at 9pm. Thanks Shane...
Hi Angel, I have cysts on the spine too, and I take Tramadol for the pain. It helps, but i'm still not totally pain free. But it makes a big difference, I...
Jenny, OMG, I can't believe that the doctor told you that! WHere on earth did he get his degree? Online??!! Wow - anyone who knows anything about NF would...
Hey Lexi, I can't chat, because I'm at work, but I have NF, too, and also have tumors under my scalp. Do they give you headaches? I get headaches all the time,...
Actually, if you go to http://www.NF.org, you can find a load of information, including doctors for each state. Its a pretty easy site to navigate. Let me know...
Hi Kim, Sorry to hear about what's going on with your back. Do you think you can travel to that city in Kansas? It might be good to get a second opionion on...
If you are anywhere near Texas try MD Anderson I had a tumor removed from my leg there last year and they were great. They new what they were dealing with I...
Wow, that is really sad. I knew there were alot of doctors that didnt' know alot about NF, but I didnt' realize that there were doctors out there who didn't...
I have NF, Scolosis, Spina Bifida Oculta, Deterating spine and below knee prothesis (bowing of my leg and several operations). My daughters have NF, ADHD,...
Bless you Bea....and all that you have had to endure. God knows we all can relate as sometimes everything happens at once and hits you HARD! My prayers to...
Hi Bea, Sorry about your accident! :( Sounds like everything is happening at once. I would definately get checked out by your own doctor - he knows of your...
My heart goes out to you (and your family). I hope that everything works out for you. Take care Sparkie ... below ... 80 ... and ... chair ... to ... stomach...
I am just needing a ear to lean on right now. As I posted in early threads, my grandmother passed away in Oct. 2004 with Colon Cancer, My dad was in the...
Dear mom I cant remember if you are in the UK but here in england there are charities that can help. There is no shame in asking for help. you have so much to...
Hey, I was wondering if you could call the school and arrange to have the teacher visit your home and talk with you about your daughter? It sounds like she is...
Hi, To anyone interested, some of us from the NF Chat room, are meeting in Springfield, Illinois on May 21 and 22, 2005. Everyone is welcome. It will be fun to...
My aunt had NF and died in 1990 at the age of 42. At first, she was diagnosed with breast cancer at age 40, had a double mastectomy, but I guess that wasn't...
Dan, I have NF and was diagnosed with Breast Cancer in 1997. I did ask my doc about it being related to having NF and he said it was not. My daughter who is...
If your wife has a family history of breast cancer, then I would say she should be checked. Otherwise, unless her doctor reccommends a mamogram, I believe...
Hi, all. It has been a while since I posted last, but a lot has happened. It has been going on 8 weeks with no car. My mom was in the hospital a couple of...
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